National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2412
To whom it may concern, Myself and my children currently access NDIS supports for ASD and Osteogenesis Imperfecta. The NDIS has allowed my family to finally have the care and support that we have needed for a long time. It means that we will cost the government less in the future due to risks being reduced from the support we currently receive. Without NDIS, we would be are risk of burn out again, resulting in needing support such as foster care due to severe burn out risk, the risk of our children being unable to access the community or education due to their struggles, and also we would be at higher risk of regular bone fractures. Since we have had NDIS support, we have been able to obtain more employment, participate in community, and have a much better quality of life. This is all beneficial to the society as a whole. NDIS cuts can occur in much more obvious places such as ART tribunal costs, ridiculous reports that have to be obtained which are more expensive than the item itself in some cases, providers rorting the system, and price guides that are set by NDIS themselves. Prices also could be cut on the cost of living for example, because then businesses would be able to stay in business who rely on NDIS clients as well. They may be less tempted to rort if their overheads weren’t so expensive (not excusing illegal behaviour). How about we consider the funding that is given through NDIS to criminals who exit jail? Shouldn’t they be put under a different program? There is high concern as well that not enough transparency has occurred in regards to what the government is going to do to reduce demands on other sectors if NDIS is cut too much. For example, what about medicare, public health, non for profit organisations, community programs, education and foster care systems? How are we going to support the community otherwise? Has that been discussed? Or is there just going to be even more gaps then there already is? Also, what about thriving kids? My children due to their disabilities cannot safely attend mainstream school, therefore if the plan is to implement more within schools, my kids risk just missing out? Or even more pressure is put back on crumbling parents? We cannot just remove and cut the NDIS without much better alternatives in place. Disability also can be a fluctuating thing, that cannot be easily defined or placed in boxes. So when the discussion is around different eligibility criteria, I hope that it is actually going to be considerate of the whole picture of a family. For example, it was a fight for us to get access for Osteogenesis Imperfecta because we don’t have the most severe type, which is ridiculous because we still need support. Just because something is more mild, doesn’t mean it doesn’t need support? It is just going to cost less than someone at the severe end of the scale. Doesn’t mean someone like us needs zero funding, we need podiatry support, physio support, support work funding and medical aids, otherwise we will just keep deteriorating to the point of needing significant support in the future. Id rather have the smaller cost to the government now, that reduces my risk and allows me to maintain function longer, then to end up reliant on a wheelchair and need a more significant level of support sooner. I hope and pray that we dont continue taking money from the most vulnerable in this country, when politicians are sitting comfortably on extremely high pay checks.