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Parent concerned about NDIS transition supports (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2467

Submission to the Senate Community Affairs Legislation Committee

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

To the Committee,

I am the parent of a 17-year-old NDIS participant who is approaching adulthood. I am writing to express my serious concerns about the proposed NDIS changes and the impact they may have on young people with disability during one of the most critical transition periods of their lives.

My son relies on NDIS funding to access supports that are essential for his wellbeing, development, independence, and future opportunities. As he approaches adulthood, these supports are becoming even more important as he transitions from school into adult life, community participation, employment pathways, and greater independence.

This transition period is already complex and stressful for families. The uncertainty created by proposed NDIS cuts and tighter eligibility rules is causing enormous anxiety about whether he will continue to receive the support he needs to function safely and participate meaningfully in society.

I am particularly concerned about:

  • the risk of young people losing support during the transition from child to adult services

  • tighter eligibility criteria based on “functional capacity” assessments that may not properly reflect lifelong disability needs

  • reduced funding for therapies, support workers, skill development, and community participation

  • increased reliance on standardised or automated planning processes instead of individual assessment

  • the lack of clarity around what “foundational supports” will actually be available if participants lose NDIS access

  • the emotional and financial pressure these changes place on families already providing significant unpaid care

For young people approaching adulthood, continuity of support is critical. Without appropriate NDIS funding, many young adults risk isolation, declining mental health, reduced independence, inability to access education or employment opportunities, and increased long term reliance on family carers and crisis systems.

My son deserves the opportunity to build skills, participate in the community, and work toward a meaningful adult life. Reducing supports at this crucial stage risks undoing years of progress and placing additional strain on both disabled people and their families.

I also believe the consultation period for these reforms has been far too short. Families caring for disabled children and young adults already manage overwhelming responsibilities and should be given adequate time to understand and respond to major legislative changes.

I respectfully ask the Committee to:

  1. Ensure no young person loses essential supports during the transition into adulthood.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2467

  1. Protect access to therapies, capacity building, and community participation supports.

  2. Guarantee individualised planning and transparent review processes.

  3. Ensure any replacement “foundational supports” are fully operational before reducing NDIS eligibility.

  4. Conduct meaningful consultation with disabled people, carers, and families before implementing major reforms.

The NDIS was created to provide disabled Australians with dignity, inclusion, opportunity, and independence. These principles must remain at the centre of any reform process.

Thank you for considering my submission.

Kind regards,

Charlene Jarrett

Balivis WA

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