National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2543
Submission on the NDIS Amendment Bill Name: I am a disabled person with multiple comorbid disabilities. The NDIS already lacks a nuanced understanding about the way complex dynamic and comorbid diagnoses intersect and how to support these. The new bill will seriously impact my ability to live my day to day life and is likely to cause greater hospitalisations and a huge cost to me and the tax payer. The Bill includes provisions that may affect participants who are not able to be contacted. This could mean a participant’s supports may be paused, reviewed, or affected if they do not respond within required timeframes. I am not able to manage responding quickly due to fluctuating access needs as a physically and psychosocially disabled person. If my literal access needs (the thing that makes the ndis supports in my life reasonable and necessary) are what cause those supports to be cut off, what can I do? This would leave me and countless others in the dust and the ER. I also am wholly reliant on unregistered support workers due to the fact that organisations have a huge turn over rate. Workers from registered organisations would routinely show up late or no show, were not personalised in their service because they saw so many different clients and were often replaced without notice by someone else. Unregistered workers have given me my life back. They have the time to develop a supportive relationship with me and know my needs and respect my consent. I am able to choose people from the marginalised communities I am part of that understand and have lived experience of what makes me experience oppression and discrimination. I need to keep the flexibility of my funding and my ability to work with independent providers who do not spend half the shift writing notes and ignoring me. I am very concerned about reducing qualified human oversight in the way funding is allocated, especially as occupational therapists and psychologists are trained to assess my needs, whereas computer systems are not. Having flexible funding is also imperative as someone with complex needs. One size does not fit all and my needs vary across time so of course where I spend my funding does too. I am very worried about getting locked in with providers who are not safe and not having access to alternative options. I do not support this bill.
Sincerely,