National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 26
NDIS Future Generations Bill 2026 — submissions close 29 May 2026.
Please reconsider this bill, it cannot go ahead in its present form, consult with people with a disability, allow them to sit at the table and be a true part of any decision making in regard to the NDIS act. ‘NOTHING ABOUT US WITHOUT US’
I am the sole carer for my daughter Kelly who has Down Syndrome and is turning 50 next month. Kelly has had balance issues all her life and with early onset osteoporosis this has become a severe issue due to weekly falls and her age which has prohibited her use of medication to assist with this at this time. Even with medication there is no guarantee that it will stop broken bones.
I strongly oppose the NDIS Future Generations Bill 2026, it seems to be a document that has been put together in a rush by people with no lived experience of disability and any changes to Kelly’s supports will mean she is unable to maintain her mobility, attend the gym with her supports who ensure she does her physical maintenance recommended by her Physiotherapist, or maintain her employment. For the first time in her life she has a job for 8 hours a week on award payments which she would be unable to continue without supports. With her many other sensory disabilities and her risk of falls she would be unable to live the life that she loves. Also, since finding her job in 2020 she has had to report to Centrelink as her income means that she is no longer on a full pension thus saving the government.
Before the NDIS she had 4 hours of disability support from the state in her whole life. She was attending a Day training service 3 days a week where she was unhappy and hated her life, she spent the rest of her time at home in her room and was depressed and unable to participate in the community, at this time I was considering that it was time that I could no longer be her full time carer as I have some health issues myself.
The NDIS has been a life saver to our family and being able to use independent support workers who I have trained myself, all of whom have Police checks, working with children’s checks, first aid certification and some studies on Community service and disability supports and appropriate insurance has been essential to us. We have tried using support worker organisations in the early years and found that they were inflexible and if a worker was sick unable to provide someone for shifts which were cancelled at the last minute. Having a number of independent workers has made supports more flexible and able to fit in when a crisis occurs. This is essential.
The NDIS has been a life saver for so many people with disabilities and it is criminal of the Australian government to be looking at attacking the lives of vulnerable people and their families when there has been no oversight of organisations who continue to rort the system. The fact that the government has attacked the participants of the NDIS rather than trying to fix the system that allows people with a disability to be subject to abuse, neglect and exploitation is appalling. It seems there have been few learnings from the Disability Royal Commission or understanding of its findings or recommendations.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 26
“The CRPD and its Optional Protocol opened for signature on 30 March 2007 and Australia became one of the original signatories. The CRPD entered into force for Australia on 16 August 2008, and the Optional Protocol in 2009.
The purpose of the United Nations Convention on the Rights of Persons with Disabilities (CRPD) is to promote, protect and ensure the full and equal enjoyment of all human rights and fundamental freedoms by all persons with disabilities, and to promote respect for their inherent dignity.
It is made up of two documents, the Convention on the Rights of Persons with Disabilities, which contains the main human rights provisions expressed as a series of Articles and the Optional Protocol to the Convention on the Rights of Persons with Disabilities.”
It further upsets me that this government with the assistance of the press have turned the Australian people against people with disabilities and their families, the weaponizing of the NDIS has put the Disability community at further risk of abuse when in the community with or without supports.
Whatever happened to promoting a fully Inclusive Community.
Yours Sincerely