Submission 2615
Dear Sir/Madam,
My name is and I am the proud parent of three beau;ful girls. I am especially honoured to be the mother of an amazing
daughter who has very complex disabili;es – my youngest child, ( ).is a dearly loved and doted upon member of our family. She is almost 13 years old with ASD level 3, hypotonia (low muscle tone) microcephaly, and a severe intellectual disability as well as physical disabili;es. She spent the first two years of life in and out of Royal Children’s Hospital and was nasogastric fed for almost two years. She is s;ll unable to feed herself and consumes food of a mashed consistency. This allows for easier swallowing and alleviates choking hazards as she is yet to master chewing. has very limited func;oning of her hands and is unable to complete any self-care tasks independently. is completely non-verbal, using an AAC (Augmenta;ve and Alterna;ve Communica;on) device and two key words signs to communicate her wants and needs. She s;ll wears nappies 24/7, experiencing both urinary and faecal incon;nence. She can have up to five nappy changes a day with regular soiling of clothes as well as bedding. has no awareness of her own safety, is unable to dress herself, blow her nose, brush her teeth, tell me when she is unwell or worse, in pain. Despite all her issues, is one of the happiest liTle girls you will ever likely meet. Everyone who knows her, loves her.
will need support with EVERY single task, EVERY single day, for the REST OF HER LIFE.
As the mother of a person with a disability, I strongly OPPOSE the NDIS Future Genera7ons Bill 2026 as tabled to parliament
How the proposed Social and Community Funding cuts by 50% will affect
LESS OPPORTUNITITES TO ENGAGE WITH PEERS
Due to her disability, and au;s;c traits, has no friends of her own. By cu[ng her Social and Community funding, will have verylimited access to par;cipate in ac;vi;es similar to those of her peers. The current opportuni;es she does have to meet other children (at the park, the pool, at the shops) will be vastly diminished.
LACK OF BUILDING ON SKILLS
’s capacity to learn is very different to that of a typical child her age. She is unable to cope with the mainstream school curriculum and has modified tasks in the special school seTling as well. Even here, requires extra ‘(adult) hand over hand’ assistance to complete any fine motor skills such as drawing, (aTempted) wri;ng and cu[ng. therefore requires a more focussed approach to educa;on that aims to increase her ‘life skills’. By cu[ng her Social and Community funding, won’t be able to prac;se the skills learnt at school in a real-life context or in a way that is meaningful. Similarly, aTends several therapies three ;mes a week to improve her func;onal capacity. During community access and social par;cipa;on, she prac;ses the skills learnt in these sessions, such as naviga;ng stairs, building stamina for increased mobility and using her AAC to request ac;vi;es. Without this regular prac;se, her skills will decline, thus increasing the need for further daily living assistance in the future.
ISOLATION
deserves the very best care. She belongs to a group of people that are the most vulnerable in society, the group that needs the MOST help. By cu[ng Social and Community funding, you put at risk the mental health of people with disabili;es. They will experience more loneliness, less connec;on, more behaviours of concern, less joy at being out in the community, more feelings of isola;on and feeling less included in society.
CARER BURNOUT
By cu[ng Social and Community funding, you are pu[ng the bulk of responsibili;es back onto informal carers who are already at maximum capacity. We are already burnt out, trying to care for someone who requires 24/7 support, whilst also aTemp;ng to look aaer ourselves (so care can be maintained long term) and juggling all of life’s other tasks. This is unsustainable and more carers and families will be pushed to the brink of despair by the weight of our care responsibili;es.
At any point in anyone’s life, you could become disabled…..or become the primary carer of someone who is disabled. The level of care required to just get through a day is relentless, and the weight of responsibility is crushing.
That’s why the NDIS is for ALL AUSTRALIANS. It therefore needs to be sustainable for future genera;ons but not at the expense of people with disabili;es and their families already carrying a very heavy load.
The NDIS MUST BE FAIR, IT MUST be CONSULTATIVE, it MUST BE RESPECTFUL and TRANSPARENT in the way that plans are delivered to par;cipants. The rights of disabled people living a happy, fulfilling and dignified life depends on it.
“The true measure of any society can be found in how it treats its most vulnerable members.”
Thank you for your ;me in reading this.
Kind regards,
Submission 2615
Dear Sir/ Madam,
My name is and I am currently a student at
I am wri<ng to strongly oppose the
NDIS Future Genera.ons Bill 2026 as tabled to parliament
Please do not pass the NDIS Amendment Bill in its current form. It removes rights, reduces choice and control and will harm people with disability.
This bill will adversely affect my family in caring for my sister with a profound physical and intellectual disability.
Thank you,
Sincerely,
Submission 2615
Dear Sir/ Madam,
My name is and I am currently a student undertaking year 11 VCE.
I am wri=ng to strongly oppose the
NDIS Future Genera.ons Bill 2026 as tabled to parliament
Please do not pass the NDIS Amendment Bill in its current form. It removes rights, reduces choice and control and will harm people with disability.
This bill will adversely affect my family in caring for my sister with a profound physical and intellectual disability.
Thank you,