Submission 2637
Submission to the National
Disability Insurance Scheme
Amendment (Securing the NDIS for
Future Generations) Bill 2026
1 June 2026
Dear Committee Secretary, Senate Standing Committee on Community Affairs,
Re: Submission for Inquiry into National Disability Insurance Scheme
Amendment (Securing the NDIS for Future Generations) Bill 2026.
I welcome the opportunity to make a submission to the Senate Standing Committee
on Community Affairs about the National Disability Insurance Scheme Amendment
(Securing the NDIS for Future Generations) Bill 2026.
I am an NDIS participant living with severe Cerebral Palsy. I am a full-time electric
wheelchair user, and I require one-on-one support 24/7.
I want to outline the harm this Amendment Bill will cause if it passes Parliament. This
Bill is too far-reaching to pass as it stands. I believe the Bill requires further scrutiny
and amendment before it proceeds.
Parliamentary Scrutiny and Transparency
The consultation period for the Amendment Bill is two weeks, which is insufficient to
allow for appropriate consultation, considering accessibility and communication
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needs. The Australian Government Guide to Policy Impact Analysis says
consultation should occur for a minimum of 30 days where possible.
The short timeline impacts me, as I know it will mean that the majority of
submissions will not be read, and therefore the government will not be able to truly
understand the substantial and detrimental effects that the Amendment Bill will have
on disabled people and their families/carers. This short timeline will not allow the
voices of this vulnerable community to be heard.
Recommendation: Amend the consultation period for a best practice minimum of 30
days.
Key decisions left to ministerial instruments, not law
The issue: The Bill allows Ministers to change who gets NDIS support (Schedule 1
Parts 8 and 9) and how much funding people receive (Schedule 1 Part 4; Schedule
- by signing an instrument, without going back to Parliament. The rules that will determine critical eligibility thresholds (Schedule 1 Parts 1, 8 and 9) have not yet
been written.
How this affects participants: The decisions that shape the lives of participants,
whether they qualify for the NDIS and what supports they can access, could be
changed without parliamentary debate or public scrutiny. Participants may not know
supports or eligibility rules have changed until their plan is affected.
This will affect me, as my funding for capacity building, community access supports,
and assistive technology could be severely reduced, without me knowing or having
the chance to appeal the decision.
Recommendation: Require that all decisions affecting NDIS eligibility and funding
levels be made through primary legislation subject to full parliamentary scrutiny, with
mandatory advance notice to affected participants before any changes take effect.
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Existing participants face narrower criteria and fewer rights to challenge decisions
The issue: The Bill changes the rules for existing NDIS participants and makes it
harder to challenge some decisions about supports and funding. It also restricts
when you can request a reassessment, removes review rights for automatic plan
renewals, and makes funding reductions unreviewable (Schedule 1 Parts 1 and 8).
Combined with restrictions on reassessment requests (Part 2), automatic plan
renewals without review rights (Part 5), and unreviewable funding reductions (Part
4), existing participants face narrower criteria with significantly fewer avenues to
challenge decisions about their supports.
How this affects participants: This does not protect participants already on the
NDIS, who could be reassessed under stricter rules. If someone’s funding is reduced
or their plan renewed automatically, they may have limited or no ability to challenge
that decision. This could make it harder for people to get extra support when their
circumstances or disability change.
This will affect me, as when the NDIS fails to give me adequate support for capacity
building, community access supports, or assistive technology, I will have no way of
appealing or reviewing their decision. It will also mean that if my circumstances
change, such as when I finish university or move out of home, I will not be able to
request changes to/increases in my funding in a timely manner, which will ultimately
affect the choices I am able to make about how I can live my life.
Recommendation: Require a “no harm” safeguard ensuring no current participant
loses access to supports unless equivalent supports are in place, with independent
review rights before any exit decision and access to unscheduled reassessments
preserved.
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Unreviewable ministerial power to cut funding across all support categories
The Minister can reduce funding for any support or group of supports by a specified
percentage through an instrument that cannot be challenged (Schedule 1 Part 4).
This applies across all budget categories. Unspent funds will no longer carry over at
plan renewal (Schedule 1 Part 5).
How this affects participants: A participant’s community participation, capacity
building or assistive technology funding could be cut without warning and without any
right to appeal. Participants who save unspent funds across plan periods for high
cost items will lose that ability entirely.
If my funding from any budget category is cut and then I am unable to appeal this
decision, I will face catastrophic physical and mental health challenges. Furthermore,
I will be unable to save money for high-cost equipment, and will lose unspent funds
from my plan that could be used in the future.
Recommendation: Require that unspent funds carry over at plan renewal for
participants saving for high-cost items and require independent review rights before
any funding reduction takes effect.
Requirement to exhaust treatment options before eligibility
The issue: A person with disability will need to exhaust treatment options before
they can be eligible for the Scheme (Schedule 1 Part 8). There will also be a removal
of whole-of-person assessment, replaced by single eligible impairment consideration
(Schedule 1 Part 3). The note that previously acknowledged environmental factors
and other ineligible impairments could affect support needs will be removed
(Schedule 1 Part 3).
How this affects participants: People with disability will need to prove their
impairment cannot be treated before they access the NDIS. Once in the scheme,
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their supports will only be assessed against a single eligible impairment rather than
their whole experience. A person’s individual circumstances will not be considered,
including ability to pay for treatment, where they live or whether treatment is actually
available to them.
This will affect me, as my needs will be reduced to a single assessment, which will
fail to consider my individual circumstances, such as the fact that I live in a rural
location and only have limited options for support and therapy services, as well as
that I am financially unable to support myself.
Recommendation: Do not proceed with a requirement to exhaust “appropriate
treatment” options – there are no safeguarding measures around participant harm
due to side effects or complications, a participant’s financial ability to pay, or their
geographic capacity to access treatments.
Unvalidated functional capacity assessment tool risks misidentifying need
The issue: The Bill shifts assessment from whole-of-person consideration to a single
eligible impairment (Schedule 1 Part 3). Read together with the eligibility thresholds
in Parts 8 and 9, the tool used to conduct functional capacity assessments must be
capable of sufficiently identifying whether a person meets the threshold for that
single impairment.
The named assessment tool is the Instrument for Classification and Assessment of
Support Needs (I-CAN). I-CAN requires validation to ensure it will sufficiently identify
the needs of all people with disability, including those whose needs may be
fluctuating or episodic and may not be captured through a point-in-time assessment,
and to ensure it is culturally appropriate for First Peoples with disability.
How this affects participants: If the assessment tool does not accurately capture
the full extent of a person’s disability, including needs that fluctuate or vary over time,
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a participant may be found ineligible or have their supports undercounted, with no
guarantee the result reflects their actual experience.
This will affect me, as if the assessment tool is given on a single day, it is impossible
to capture the way that my disability affects me depending on the environment I am
in or what activities I am participating in at the time.
Recommendation: Do not proceed with I-CAN as the functional capacity
assessment tool unless it has been demonstrably validated to identify the needs of
all people with disability, including those with episodic or fluctuating disability, and
demonstrated to be culturally appropriate for First Peoples with disability.
Supports cut before replacement system is ready
The issue: From 1 October 2026, the government has announced funding for social,
civic and community participation supports will be cut by 50 per cent and capacity
building daily activities by 10 per cent for all participants, reductions that will be
implemented through the ministerial instrument power in Schedule 1 Part 4. The
Foundational Supports system intended to fill that gap has no confirmed
implementation date and is not yet operational.
How this affects participants: Supports that help participants connect with their
community, build skills and maintain independence may be cut before anything
exists to replace them, leaving carers and families with greater responsibilities and
no additional support. These supports are often what help people stay visible,
connected and safe.
If my therapy supports are reduced or removed from my plan, my health will suffer
significantly. I will likely lose the little range of motion that I have, which will lead to
me being even more reliant on others for all daily tasks. Without occupational
therapy funding, I will be unable to apply for the equipment/assistive technology I
require to remain as independent as possible. If I do not have funding for
psychosocial support, the emotional struggles that accompany being disabled will
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likely increase, as I will not have a trusted and impartial person to discuss my
challenges with, and I will not be able to learn strategies to cope with them.
If I do not receive funding for nearly 50 hours of support work a week, I will be unable
to participate in community activities, such as going to university, going shopping, or
socialising with friends. One of my parents will also have to permanently quit their job
in order to care for me, as I am unable to be left alone, due to the severity of my
physical disability. This will have a flow on effect to my family, as my parents will
struggle to provide the basic necessities for us to survive.
If my funding for these supports is removed before the supports are in place, I will
face detrimental effects to my physical and mental health, and I will be unable to
achieve my career and social goals or become the best version of myself that I can.
Recommendation: Require that no reductions to community participation or
capacity building supports take effect until Foundational Supports are fully
operational, adequately funded and demonstrably able to meet the needs of those
who will lose NDIS supports.
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