National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2694Committee Secretary,
We are the parents and primary carers for our 48 year old son, redacted, who has moderate intellectual disability, level 3 autism and severe anxiety disorder.
As we are now in our late 70s we are deeply concerned about changes to the NDIS which may affect future supports for our son when we are no longer able to care for him.
redacted has a history of extremely challenging behaviours, including self harm and property damage, which is managed by close supervision provided by highly skilled support workers, as well as medication and therapies to alleviate his anxieties.
After many years of inadequate support services, we now have a high quality, reliable support service, which is registered with NDIS, providing experienced, highly skilled support staff.
They provide the one to one support redacted needs to help him manage his anxieties and challenging behaviours in his daily life at home and while accessing the community. He enjoys their companionship and likes his support workers very much.
We agree that there is a need to investigate and regulate providers to prevent exploitation and fraud, however, we are concerned that changes to the NDIS will affect the support services already doing the right thing and providing quality supports tailored to their clients.
When the NDIS was rolled out, we were told that people with lifelong disabilities would have a fair, personalised system that respected their individual needs and which gave participants real choice and control. All the arrangements we’ve made since the introduction of the NDIS have been based on that promise.
As ageing parents, our greatest fear is that the stability redacted has now - achieved only through consistent, skilled, one to one support - could be taken away. Any reduction to a lower level of support would place him at immediate risk and undo years of progress.
We simply ask that the NDIS continue to honour it’s commitment to people like redacted, whose disabilities are lifelong and whose need for specialised support will never diminish.
Sincerely,