Loss of social connection and personal care due to funding cuts (Participant experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2727

’s Submission on the NDIS Amendment Bill

My name is I am a disabled person, advocate and youth worker; I have lived my whole adult life as a NDIS participant. the scheme in its current form has changed my life. allowing me to study, hold down multiple jobs, maintain an active social life, stay connected with friends and family whilst allowing and even prepare for an upcoming leadership trip to the United Nations.

\The upcoming changes to legislation could mean that I am forced to give up my employment, volunteer work and become housebound. as the social and community participation funding that means I can leave my house and live my life with the most incredible support workers will be drastically cut. A 30 to 50 Per cent reduction in funding means I can no longer go out to eat or to important activities like hydrotherapy, physiotherapy, psychology and art classes which help me maintain my mobility and prevent mental and emotional burnout. Without access to Social and community participation I would lose all contact with family and friends as I cannot see them in their homes as they are not physically accessible and they are unable to help me move around, do personal care, feed me or make me feel physically comfortable. Disabled people deserve to have access to any support they need to live their best lives and have fantastic fulfilling life. Other peoples’ social outings and their hobbies and what they choose to do with their social lives are not judged or restricted by the Australian government so why are disabled people being audited like this.

I believe the Henry VIII rules placed into the legislation that give politicians power to make whatever changes to the legislation they feel will benefit the population which will stay in place for a year minimum. This feels like a gross power imbalance whereby people with different backgrounds and life experiences to disabled people are allowed to make changes about the policy that doesn’t directly impact their care. With submission times for this bill already finite, and in my role as an advocate I already feel hamstrung and powerless in my ability to create political change through this submission process which is counterintuitive to the human rights of persons with disabilities. This bill puts lives and rights at risk and the lack of consultation on these bills and future ones tell us as Australian that you misunderstand and undervalue the power of the disability community and our rights to live, work, and enjoy life with the help we deserve like politicians can do every day.