Difficulty maintaining care plans due to renewal uncertainty (Participant experience)

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Submission 2738

Attention: Committee Secretary, Senate Standing Committee on Community Affairs

Submitted by email: community.affairs.sen@aph.gov.au

Date: 1st of June

I welcome the opportunity to make a submission to the Senate Standing Committee

on Community Affairs about the National Disability Insurance Scheme Amendment

(Securing the NDIS for Future Generations) Bill 2026.

I am an ordinary Australian with friends and family friends who rely on the NDIS, I

want to outline the harm this Amendment Bill will cause if it passes Parliament. This

Bill is too far-reaching to pass as it stands. I believe the Bill requires further scrutiny

and amendment before it proceeds.

Parliamentary Scrutiny and Transparency

The consultation period for the Amendment Bill is two weeks, which is insufficient to

allow for appropriate consultation, considering accessibility and communication

needs. The Australian Government Guide to Policy Impact Analysis says

consultation should occur for a minimum of 30 days where possible.

The short timeline will not allow a careful consideration of how to reduce budget

costs whilst also maximising the NDIS’s continued usefulness for disabled

Australians. It will force a sudden shift in care and support for many people I know

and will leave whole social networks and communities destabilised from the shock

and added challenges this will cause.

Recommendation: Amend the consultation period for a best practice minimum of 30

days.

Key decisions left to ministerial instruments, not law

The issue: The Bill allows Ministers to change who gets NDIS support (Schedule 1

Parts 8 and 9) and how much funding people receive (Schedule 1 Part 4; Schedule

  1. by signing an instrument, without going back to Parliament. The rules that will 1

Submission 2738

determine critical eligibility thresholds (Schedule 1 Parts 1, 8 and 9) have not yet

been written.

How this affects participants: The decisions that shape the lives of participants,

whether they qualify for the NDIS and what supports they can access, could be

changed without parliamentary debate or public scrutiny. Participants may not know

supports or eligibility rules have changed until their plan is affected.

It’s difficult enough to keep on top of care plans and maintaining routines without

having to wait around for subsidised appointments and care plans to suddenly run

out without viable options for their renewal or an adequate replacement.

Recommendation: Require that all decisions affecting NDIS eligibility and funding

levels be made through primary legislation subject to full parliamentary scrutiny, with

mandatory advance notice to affected participants before any changes take effect.

Existing participants face narrower criteria and fewer rights to challenge decisions

The issue: The Bill changes the rules for existing NDIS participants and makes it

harder to challenge some decisions about supports and funding. It also restricts

when you can request a reassessment, removes review rights for automatic plan

renewals, and makes funding reductions unreviewable (Schedule 1 Parts 1 and 8).

Combined with restrictions on reassessment requests (Part 2), automatic plan

renewals without review rights (Part 5), and unreviewable funding reductions (Part

4), existing participants face narrower criteria with significantly fewer avenues to

challenge decisions about their supports.

How this affects participants: This does not protect participants already on the

NDIS, who could be reassessed under stricter rules. If someone’s funding is reduced

or their plan renewed automatically, they may have limited or no ability to challenge

that decision. This could make it harder for people to get extra support when their

circumstances or disability change.

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PWDA Template: Submission to the National Disability Insurance Scheme

Submission 2738

People with disabilities thrive when given adequate supports and become more

‘functional’ but this can only happen when those supports remain in place. Taking

away supports for those with low care needs or who are going through an easier

patch keeps these people in an ongoing struggle to simply get by and makes it more

likely they will need more serious and more costly intervention later on due to decline

in their ‘functionality’ as a result of a lack of NDIS support.

Recommendation: Require a “no harm” safeguard ensuring no current participant

loses access to supports unless equivalent supports are in place, with independent

review rights before any exit decision and access to unscheduled reassessments

preserved.

Unreviewable ministerial power to cut funding across all support categories

The Minister can reduce funding for any support or group of supports by a specified

percentage through an instrument that cannot be challenged (Schedule 1 Part 4).

This applies across all budget categories. Unspent funds will no longer carry over at

plan renewal (Schedule 1 Part 5).

How this affects participants: A participant’s community participation, capacity

building or assistive technology funding could be cut without warning and without any

right to appeal. Participants who save unspent funds across plan periods for high

cost items will lose that ability entirely.

Treating aspects of the NDIS as big-ticket or small-ticket items to remove at will the

ease up some pressure on the budget does not work because a person’s care needs

are complex and multifaceted. Removing one service in one area may require that

person accessing another service in another area. Moreover, needs do not stay

consistent, there are once-off or annual services that people need which they can

save up for only if they are given space to use their funds for their needs rather than

having their funds stripped to always the barest essentials to keep existing.

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PWDA Template: Submission to the National Disability Insurance Scheme

Submission 2738

Recommendation: Require that unspent funds carry over at plan renewal for

participants saving for high-cost items and require independent review rights before

any funding reduction takes effect.

Requirement to exhaust treatment options before eligibility

The issue: A person with disability will need to exhaust treatment options before

they can be eligible for the Scheme (Schedule 1 Part 8). There will also be a removal

of whole-of-person assessment, replaced by single eligible impairment consideration

(Schedule 1 Part 3). The note that previously acknowledged environmental factors

and other ineligible impairments could affect support needs will be removed

(Schedule 1 Part 3).

How this affects participants: People with disability will need to prove their

impairment cannot be treated before they access the NDIS. Once in the scheme,

their supports will only be assessed against a single eligible impairment rather than

their whole experience. A person’s individual circumstances will not be considered,

including ability to pay for treatment, where they live or whether treatment is actually

available to them.

Disability and impairment are expressed in different ways because people find their

own ways of managing around their disabilities. This risks unfairly biasing the NDIS

to people who fit certain cultural and wealth based strategies of living with disability.

It also ignores the interconnected nature of human health, that treating only one

aspect of a person at a time does not provide the best nor most cost effective care.

Recommendation: Do not proceed with a requirement to exhaust “appropriate

treatment” options – there are no safeguarding measures around participant harm

due to side effects or complications, a participant’s financial ability to pay, or their

geographic capacity to access treatments.

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PWDA Template: Submission to the National Disability Insurance Scheme

Submission 2738

Unvalidated functional capacity assessment tool risks misidentifying need

The issue: The Bill shifts assessment from whole-of-person consideration to a single

eligible impairment (Schedule 1 Part 3). Read together with the eligibility thresholds

in Parts 8 and 9, the tool used to conduct functional capacity assessments must be

capable of sufficiently identifying whether a person meets the threshold for that

single impairment.

The named assessment tool is the Instrument for Classification and Assessment of

Support Needs (I-CAN). I-CAN requires validation to ensure it will sufficiently identify

the needs of all people with disability, including those whose needs may be

fluctuating or episodic and may not be captured through a point-in-time assessment,

and to ensure it is culturally appropriate for First Peoples with disability.

How this affects participants: If the assessment tool does not accurately capture

the full extent of a person’s disability, including needs that fluctuate or vary over time,

a participant may be found ineligible or have their supports undercounted, with no

guarantee the result reflects their actual experience.

The NDIS helps keep other services such as Centrelink, hospitals, and psychologists

able to handle the load of clients/patients they receive; Australia has care needs and

when a major support is taken away from disabled Australians not only do those

needs increase and become more complex but other services are forced to take the

strain. Cuts to the NDIS can’t just be a snapshot to lower the numbers at this

synchronic moment in time, if the Australian Government is to reduce the costs of

disability support it must consider how these supports cater to compex and

fluctuating situations and needs. To reduce the amount of situations requiring

significant intervention will require wider ranging supports rather than fewer supports.

The way to cut costs in the long term may ironically be to increase them in the short

term.

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PWDA Template: Submission to the National Disability Insurance Scheme

Submission 2738

Recommendation: Do not proceed with I-CAN as the functional capacity

assessment tool unless it has been demonstrably validated to identify the needs of

all people with disability, including those with episodic or fluctuating disability, and

demonstrated to be culturally appropriate for First Peoples with disability.

Supports cut before replacement system is ready

The issue: From 1 October 2026, the government has announced funding for social,

civic and community participation supports will be cut by 50 per cent and capacity

building daily activities by 10 per cent for all participants, reductions that will be

implemented through the ministerial instrument power in Schedule 1 Part 4. The

Foundational Supports system intended to fill that gap has no confirmed

implementation date and is not yet operational.

How this affects participants: Supports that help participants connect with their

community, build skills and maintain independence may be cut before anything

exists to replace them, leaving carers and families with greater responsibilities and

no additional support. These supports are often what help people stay visible,

connected and safe.

It widens gender inequality to remove these supports without proper replacement

because it increases the domestic labour required to help disabled Australians live

ordinary lives and this domestic labour will almost fall predominantly on women.

Moreover it weakens our communities by cutting off so many people, both NDIS

participants and carers from participating in their communities and in the economy

adequately.

Recommendation: Require that no reductions to community participation or

capacity building supports take effect until Foundational Supports are fully

operational, adequately funded and demonstrably able to meet the needs of those

who will lose NDIS supports.

Please consider these recommendations.

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PWDA Template: Submission to the National Disability Insurance Scheme

Submission 2738

Kind regards.

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PWDA Template: Submission to the National Disability Insurance Scheme