National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2764
National Disability Insurance Scheme (Securing the NDIS for Future Generation BILL
I write this submission on behalf of my son who has an Intellectual Disability, Autism and anxiety.
The NDIS has been supporting my son over various years to continue to live independently in his own Unit. To maintain a physical and healthy life by ensuring his needs are meet, and to also continue to work towards his long-term goals. My son’s disability requires formal supports to continue with what I see as reasonable and necessary .
The Proposed changes to the Act will have devasting impact upon his life – physically, mentally and place him in isolation should his funds be reduced as has been announced. My son would feel confused, would not have the ability to understand why he cannot continue to have a responsible normal life, he would feel scared for his future and feeling of isolation.
I don’t believe there has been sufficient information provided to the public or participants. It has left us all extremely worried for out family member and their future. An announcement such was made place myself in a state of fear.
These changes will impact my sons life completely. He use a lot of funds under Social and Community Support to actively be involved in the community ie volunteering for various activities and jobs around the community. I require the support person to guide and assist me to learn and engage without such I would not be able to participate and learn new skills that require ongoing and regular attendance.
My son is an active ocean swimmer and trains couple times a week. As he is unable to drive due to my intellectual disability, he relies on support staff to drive him to the beach and assist with my swimming gear. He is reliant on support staff for all of my daily living needs, without such would not be able to continue living on my own. The support provides him with a wrap around for the community activities and daily living.
My son is well known in the community due to his participation and actively seeking opportunities to do various jobs. The community respect and acknowledge his abilities’ and are very keen to support.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2764
My son does not have any informal supports except for myself (His mother) however, this has changed as I am now full-time carer or my husband who has Parkinson Disease therefore my son is totally dependent on formal supports.
We have recently been through ART Appeals to increase all his funding – Social, Community, Daily Living, OT and Support Coordination which had taken 18 months for a resolution which we succeeded in. The thought of having that cut back, frightens me and places me in a highly stressful state given the fear I have for my son and his future. I am 74 and as I said my husband is very unwell.