National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2960
My name is- i was diagnosed with multiple sclerosis at Westmead ~ was nursing at the time 38yrs in fact but unfortunatly my career was cut short due to my very low immune system and Covid I was given the oppotunity to go onto the NDIS and start therapies and be a part of (your home care) a reputable registered provider for assistance with daily tasks. I also through alot of painstaking 5 yrs of knockbacks have been able to secure a SDA property my forever home after been with not 1 but 2 unregistered SDA providers which cost me alot of money, so I get were the shonkiness comes in and the need to real the money in. Im now in progressive MS wheelchair bound and mainly in bed or lounge room in my chair. Im only telling a snippet of my daily life my husband is my informal support and I rely on him alot oh and just recently they cut 75% of my plan without consultation so I am no not able to go to hydrotherapy and only 12 support coordination hours from 48hrs per year. To get assistance for my next functional capacity report
I do hope you understand from a participants point of view and the stress we are under and what will happen to people like us. My choice and control has gone.