Real-World Impacts of the NDIS Future Generations Bill on Children, Families and
Regional Therapy Services
Senate Inquiry Submission
National Disability Insurance Scheme Amendment (Securing the NDIS for Future
Generations) Bill 2026
Thank you for the opportunity to provide feedback on the proposed legislation. I am an occupational therapist working with children and families from toddlers through to teenagers in a regional and rural area of NSW. My work spans homes, schools, clinics and community settings. I support neurodivergent children, children with developmental delay, and young people with functional challenges that affect their participation, learning, relationships and daily routines.
My submission reflects what I see every day on the ground: the pressures on families, the gaps in access, and the practical consequences this Bill may create for children, parents, therapists and communities.
- Access Pathways and Early Intervention In regional areas, families already face long waits for paediatricians, psychologists and developmental assessments. Many rely on functional evidence from allied health because diagnostic services are limited or unaffordable.
Narrowing access pathways or tightening definitions of developmental delay will mean:
- toddlers and preschoolers miss early intervention
- families wait months for assessments they cannot access locally
- children enter school without the supports they need
- small challenges escalate into bigger ones Early intervention is not a luxury. It is the difference between a child coping in school versus disengaging. I regularly see how early sensory, communication and regulation supports prevent later crisis, school refusal and behavioural escalation.
- Reassessments and Plan Flexibility Children’s needs change rapidly from toddlerhood to adolescence. Neurodivergent children, in particular, experience periods of regression, overwhelm or transition stress.
The proposed changes risk:
- making reassessments harder to obtain
- increasing the burden of “proving” ongoing need
- reducing flexibility to adjust supports when a child’s functioning shifts In regional areas, reassessment delays can stretch for months. Families are left without the ability to respond to new challenges at school, puberty-related changes, or sudden increases in anxiety or sensory overload.
Rigid plans do not reflect the lived reality of childhood development.
- Impacts on Neurodivergent Children and Those With Developmental Delay Many of the children I support function differently across environments. A child who appears capable at home may be overwhelmed in a busy classroom. A teenager who manages well in structured settings may struggle in unstructured community environments.
If eligibility becomes more tightly tied to “significant functional impairment,” many children with genuine participation barriers will be excluded, including:
- autistic children without formal diagnosis
- ADHD students with emotional regulation challenges
- children with sensory processing differences
- children with developmental delay who do not meet strict thresholds These are the children who rely on OT to stay engaged in school, maintain friendships, and participate in daily life.
- Workforce and Service Sustainability in Regional and Rural Areas Regional and rural communities already face:
- workforce shortages
- limited provider choice
- long travel distances
- fewer multidisciplinary services
Small practices like mine carry significant unpaid administrative load. If reporting requirements increase or plans become more restrictive, many sole traders and small clinics will not be able to continue NDIS work.
The consequences are serious:
- provider closures
- reduced local access
- families forced to travel long distances
- increased waitlists
- loss of continuity of care Once a regional provider closes, families often have no alternative.
- Impacts on Schools, Families and Community Participation My work in schools shows how essential timely OT support is for:
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regulation
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transitions
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emotional safety
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communication
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participation in learning When supports are reduced or delayed:
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teachers carry the load
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behaviour escalates
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attendance drops
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learning gaps widen
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families experience increased stress
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schools struggle to meet diverse needs Community participation also suffers. Children withdraw from sport, social groups and everyday activities when their sensory or emotional needs are unsupported.
- Unintended Consequences
Based on what I see across home, school, clinic and community settings, the Bill may unintentionally lead to:
- more children missing early intervention
- increased school refusal and behavioural escalation
- widening inequity between metropolitan and regional families
- higher long-term costs due to unmet needs
- burnout and exit of experienced clinicians
- reduced participation in education, community and family life These outcomes undermine the goal of securing the NDIS for future generations.
Conclusion and Practical Recommendations
To ensure sustainability without harming children and families, I recommend:
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Maintain flexible access pathways, especially for developmental delay and neurodivergent children in regional areas.
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Protect early intervention, recognising its long-term benefits for education, participation and wellbeing.
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Ensure reassessments are timely and accessible, without increasing burden on families.
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Retain plan flexibility so supports can adjust as children grow and their needs change.
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Reduce administrative load on small providers to prevent further workforce loss.
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Consult frontline clinicians before implementing changes to functional assessment requirements.
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Explicitly consider regional and rural impacts, including workforce shortages and limited service options.
The NDIS has transformed the lives of many children in my community. I support efforts to ensure its sustainability, but reforms must not come at the cost of early support, participation and long-term outcomes for the next generation.
Thank you for considering this submission.