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Submission 3170 — Name Withheld (Attachment 1) — NDIS Future Generations Bill

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 3170 - Attachment 1

National Disability Insurance Scheme Amendment

(Securing the NDIS for Future Generations) Bill 2026

IMPORTANT CONSIDERATIONS SUMMARY

in response to announcements by Minister Mark Butler on 22 April 2026

Please refer to the companion document which contains explanatory notes accordingly: CALCSubmissionPart3_InDepth_20260601_12pp.pdf This is not an exhaustive list of concerns.

Prepared by NDIS Participant, Parent of a person with disability, Former Disability Support Worker, Former Young Carer.

  1. Anyone anywhere of any age at any time could acquire disability. The NDIS is for every Australian.

  2. People with disabilities want the NDIS to be sustainable and succeed more than anyone. Our lives depend on it!

    1. Every $1.00 invested in NDIS Participants returns $2.25 to the economy. It is not welfare.

It is productivity, human rights, an investment in our lives and Australia’s future prosperity

  1. People with disabilities are their own best experts on their disabilities and their own lives. This expertise based on lived experience must be respected and taken on board by decision-makers.

  2. Decisions have real world consequences beyond the person with disability.

  3. People with disability are being punished and scapegoated for government and NDIA shortcomings.

  4. People with disabilities demand the NDIA get its ‘own house in order’ before blaming Participants and Providers for cost blowouts. Less lawyers, more lives lived with dignity.

  5. If the NDIA Planners and Delegates understood disability more and didn’t have their decisions clouded by internalised ableism, perhaps more Plans would be produced that actually met people’s needs and there wouldn’t be so many costly unscheduled reviews!

9.   I feel like my life is as a disabled person is being used as a political football.  I am not the only one

and this is causing harm in our communities.

  1. The message from government: “If we don’t fix the NDIS now, we’ll lose it forever,” feels like an ultimatum, as if our lives as people with disabilities are being held hostage to the nation.

  2. Minister Mark Butler’s co-opting of the disability rights movement’s catchphrase, “Nothing About Us About Us” is offensive when there has been no true or meaningful co-design with people with disabilities.

  3. I am scared of what’s coming for the NDIS: black box algorithms, no rights of appeal, no human intervention or discretion around funding decisions and processes. RoboPlans = guaranteed RoboDebtDeaths.

… continued overleaf

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 3170 - Attachment 1

continued from page 1 …

  1. I am scared because Mark Butler said, “… this will see us rebuild systems that used to be there for people with less significant support needs,” The ‘old system’ was not-fit-for-purpose, did not cater for the needs of younger people (under 65) with disability, was underfunded, inappropriate, inadequate and unsafe. I do not want to go back there.

  2. The NDIS was created because the fragmented, underfunded, not-fit-for-purpose, block funded state systems were not working and causing harm to people with disabilities.

  3. “Heed to succeed!” Foundational Supports need to be planned very carefully with earnest co- design with people with disabilities in order to work. This process cannot be rushed.

  4. My best workers are not from big business agencies but individuals and smaller local providers including those run by people with disability for people with disability. Big corporate agencies can’t provide the stability and safety my current team provides.

  5. I am scared of losing my best Support Workers to onerous and unaffordable mandatory registration.

  6. Mandatory registration of Providers must be ‘light touch’ registration – simple, affordable, without onerous bureaucratic compliance requirements or we will lose the best Support Workers and allied health providers from the sector. I fear losing excellent current supports for the sake of a bureaucratic burden.

  7. Sole Traders and Independent Support Workers bring great value to people with disabilities and their families when they are dedicated to person-centred care and align with human rights principles.

  8. Sole traders and small businesses are able to provide more effective individualised services. They have smaller customer-bases – get to know the nuances of clients and employees very well.

  9. Registration in itself is not a safeguard. Anne Marie Smith died at the hands of a Registered Provider.

  10. Registration means nothing if regulation is weak and cannot be enforced.

  11. I want the choice to choose providers that aren’t registered and do not charge an “NDIS tax” (like a “wedding tax”).

  12. Minister Butler’s idea of a prescribed list of Support Providers and intermediaries like Plan Managers and Support Coordinators from which Participants can choose, takes away our Choice and Control.

  13. Digital payment systems need to be set up equitably and have manual back-up systems.

  14. Sole Traders and Independent Support Workers deserve the same hourly rate for their services as other businesses.