National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3284
Submission Regarding Proposed NDIS Legislative Changes 2026
I write this submission as someone closely connected to a family living with the daily realities of profound disability and long-term caring responsibilities.
While I am not a primary carer myself, I have witnessed firsthand the immense emotional, physical and mental strain experienced by a single mother caring for her adult son with Autism Spectrum Disorder Level 3 who requires 24/7 support.
I am deeply concerned about the impact the proposed NDIS reforms may have not only on participants with permanent disabilities, but also on the carers who already carry enormous responsibility behind the scenes.
From my perspective, the current reform direction appears likely to increase stress, uncertainty and exhaustion for families who are already operating at their limit.
I have personally seen the toll long-term caring responsibilities can take. The ongoing pressure of navigating support systems, fear around reassessments and uncertainty about future funding creates constant anxiety and emotional strain.
I am particularly concerned that if supports are reduced or made harder to access, the impact on carers’ health and wellbeing may become severe. In this case, I already worry about the long-term health and burnout of a mother who has spent decades caring for her son with very little opportunity for rest or consistency in her own life.
When carers reach burnout, the consequences extend far beyond the individual family. The healthcare system, mental health services and broader community ultimately absorb those impacts.
I also believe the current reform discussions risk overlooking the important role community participation supports play in maintaining stability, routine, confidence and quality of life for people living with disability.
These supports are not simply social activities. They are often essential supports that help participants remain connected, engaged and safe within the community.
I strongly support efforts to address fraud and misuse within the NDIS. However, I believe reform efforts should focus primarily on improving provider oversight, governance and accountability rather than increasing pressure on genuine participants and already exhausted carers.
I urge the Committee to carefully consider the broader human impact these reforms may have on families, carers and support networks across Australia.
Thank you for the opportunity to provide this submission.