Submission 3290 — Name Withheld — NDIS Future Generations Bill | External submission

Senate Community Affairs Legislation Committee

NDIS Amendment (Securing the NDIS for Future Generations) Bill

2026

SUBMISSION

What I am asking for:

That  the NDIS Amendment  (Securing  the NDIS  for Futures

Generations)  Bill 2026  not pass  the Senate  without  crucial

amendments in many areas.

Introduction

I am writing on behalf of my son, , who is 55 years old. He will be placed into life threatening situations and at risk of great harm should the above Bill be passed without significant amendments or even rejected by the Senate.

is a man who was born with a profound intellectual disability and autism. He is a loved and valued member of his family, requires individual support workers every hour of the day who know him well, who are well supported, who share his family’s values about him and who assist him in all areas of his life. has lived successfully in his own home and community close to his small family in a northern suburb of Sydney for many, many years.

is a man for whom the NDIS was intended. There is no

“treatment option”  - only  reliable, trusted, individualised support and

allied  health  professionals working  together  with  his family and  his

support team  to implement  strategies which enable him  to  live an

ordinary, good life and to take every opportunity to learn and grow.

Summary of ’s support system

’s NDIS plan and funding has been self-managed on his behalf by his family and friends since the inception of the NDIS, providing him with choice and control about with whom he lives,

where he lives, what his support needs are, and how this is

happens for him on an hourly and daily basis.

● On              ’s  behalf, we  are  direct employers  of  his support

workers, comply with the relevant award and have appropriate and relevant supervision of paid support workers. We have a system which - via a culture of relationship and belonging - safeguards him from neglect, harm and exploitation (all of which he experienced

much earlier in his life when he was placed in segregated

accommodation run by service providers). Since he moved into his own home many years ago, he has never experienced harm and neglect.

●  With support,          participates in all aspects of his life including

achieving many roles in his home and within the wider community including neighbour, volunteer, and friend (to name only a few).

On behalf of , there are two immediate issues I would like to raise and, at the end of this submission, I have listed other areas which are also of great concern.

The Minister’s announcement to cut Social and Community Participation Funding by 50% by October 2026

Social and Community Participation funding is a crucial part of ’s

core funding.   If  it is cut, it will be devastating for him.  Any reduction

would destroy the intentional and long-term work by him and his family which has made his life what it is today, as well as the vision for his future and the continuation of the many relationships which contribute positively to his life. This funding enables to:

be supported in several volunteer roles in the community
have capacity to seek new volunteer roles
meet up with family and friends
be a good neighbour
be known in his community
continue to learn skills and increase his capacity to communicate without words or signs.

Should this funding be cut from his core funding, the outcome for would mean that we would not be able to employ support people thereby:

resulting in him being in harmful and life threatening situations every single day
increasing maladaptive communication techniques
depriving him of being included in meaningful and valued roles and connections in the community
lessening the positive experiences of broad social inclusion for which and his family and friends have intentionally strived for many, many years.

Additionally, for his small family, this would be overwhelming resulting in significant increase in our long-term daily stress and the potential for mental health issues.

Cuts to this funding would also deprive the broader community of learning about difference and diversity.

The Minister’s power to reduce support budgets for all, or targeted groups of participants, without an appeal process

Having this power with no appeal process to decisions made by the

Minister means that         and his family  will be in the position of

having no opportunity  to seek a change  in a   decision which could

massively disadvantage him. It is totally unacceptable and places him and us at serious disadvantage and risk.

It also means that there will be no Parliamentary or public consultation about future support for individuals.

The Bill needs to ensure that appeals, public and Parliamentary scrutiny must all continue.

Other issues which are of great concern

Mandatory Registration We are not service providers. We self-manage and directly

employ staff on ’s behalf. This, together with other

ongoing safeguards for through family, friends and community members, has kept safe from harm, has

maintained  the  variety  of  roles he  currently enjoys and

enabled him  to  live  in  his own home  for many years.

Mandatory registration could stop his family and friends from

recruiting  and  training  and  supporting              ’s  own

workers.

Automated decision making with no appeal process It is untenable that through his family and friends would have no appeal against automated/AI decisions with no human input in the future.

Conclusion

Please ensure:

that the Minister cannot reduce the Social and Community Participation funding In October 2026.
that the Bill is rejected/sent back to the House of Representatives with significant amendments to safeguard the future for and for people with disability and families in Australia.

May 27, 2026