National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3300
Inquiry: The National Disability Insurance Scheme Amendment (Securing the
NDIS for Future Generations) Bill 2026
Submission to Schedule 2 Part 1—Registration of NDIS providers
1st June 2026
As parents of a NDIS participant with a permanent disability requiring 24hr care, we are concerned that the planned mandatory registration of carers may become onerous and inefficient.
A system that allows for the simple low cost registration of individual carers should be adopted. The system should encourage the choice and self-management of carers, suited to participants needs (both physically and emotionally), and should not favour agency run models.
Currently our daughter (41 yrs old, RETT Syndrome) is a NDIS participant under a partial self funded NDIS model. This has allowed us to gather a group of professional, talented, warm, and caring women to provide supports and activities for her that have measurably improved her health and wellbeing. Although professional, qualified, and carrying insurances, these carers are not NDIS registered.
Previously, under agency based systems, selecting carers that understood our daughter’s disability and needs was not possible due to impersonal, business focused agencies with high staff turnover, disinterested administrations, lack of direct communication, and lack of individual care.
Financially, the self-managed carer model has proved significantly cheaper than the agency run model. We have been able to negotiate reasonable rates, well below NDIS maximums, in contrast to agencies that would charge maximum rates while paying carers minimums.
We believe that a (future) NDIS registration system for individual carers should be as simple and low cost as possible. This may entail registration with an association (eg: Australian Association of Community, Aged and Disability Workers), noted experience, insurances and references. Anything that requires the current NDIS provider registration conditions will increase reliance on agencies, force single talented carers out of the disability sector, remove choice, downgrade quality of care, and increase NDIS costs.
We request that any proposed carer registration legislation be subject to extensive input from NDIS participants, families and carers and ensure that individuals, not businesses, are at its heart.
Yours sincerely,
Philip Brown
(RETT Syndrome is a genetic neurological disorder that is regressive and results in loss of motor function. Our daughter is non-verbal, incontinent, cannot feed or toilet herself and requires 24hr care.)