NDIA Accountability Project

Impact of NDIS changes on a man with Down Syndrome and Autism

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Submission to the Senate Community Affairs

Legislation Committee

NDIS Scheme Amendment (Securing the NDIS For Future Generations) Bill 2026

Name withheld please.

The following submission are the unedited words of my son . I as his mum assisted him, at his request, to document and submit.

Dear sir/madam,

My name is 25yrs. I do have Down Syndrome and Autism. I am born this way long ago.

I am talking about NDIS rules. Do you have easy read for me?

Please don’t change NDIS rules. It will stop my life, can’t do that. I say wow heaps of times about this. Don’t know what to do. NDIS is very important. You should care about disabled people like me. Don’t break my heart, I am a normal man. My supports get me normal life, I need this. Other people need this too for our life. You want me to stay home? Does wreck my life.

Please don’t stop me get to my work. I love my work so much, makes me better in my life, my heart happy. I have to help other people. I play (inclusive) football 9 years. I

  • have friends my football.

  • I am try hard in my life to be normal man things. Going out as well, my supports help me, that’s fine. That’s good thing to do. Help me be happy person not stay home be sad in my mind. I am the same like my brother and sister does work. I want to live my own like other man and lady does soonish. Get me so happy.

  • Is very rude you do new rules does hurt Down Syndrome people. You want us die stay at home? No support does take my life. I need supports help me and make me safe.

  • My mum works so hard help me. She get sick and can’t drive now.

  • I did vote as well. I did think about this.

  • I am saying no about what you are doing.

Please think yourself. I am being so serious right now. Is my rights, helping Down Syndrome same as other people. I am the same. I do speak up for myself, my family and other Down Syndrome (people.)

  • I did meet boss people, (government MP and premier), and they shake my hand at my job. I think probably they are faking somehow not really nice to me and not tell me truth.

You please meet me and shake my hand and tell me real truth about not ok you ruin my life. Listen to us.

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I work so hard. Is not ok not good. You are doing the wrong thing. In my mind I thinking a lot, you do know is bad thing to do. I do care about this so much.

I do say fix yourself, get better thinking. do the right thing.