Rural Australians with disability face disproportionate impacts from NDIS changes (Individual advocacy)

‹ PrevPage 1 of 9 · Source p. 1Next ›

Submission 367

National •~L•                                                      The equitable, healthy and sustainable      Rural Health                       access for rural, regional and remotei,~ • • ,, •  Alliance                                         communities across Australia

29 May 2026

Senator Dorinda Cox

Committee Chair

Senate Standing Committee on Community Affairs - Legislation Committee

PO Box 6100

Parliament House

Canberra ACT 2600

Email: community.affairs.sen@aph.gov.au

Submission to the Senate Community Affairs Legislation Committee on the

Dear Senator Cox and Legislation Committee

The National Rural Health Alliance (the Alliance) welcomes the opportunity to respond to the Senate Standing

Committee on Community Affairs - Legislation Committee Inquiry into the National Disability Insurance Scheme

Amendment (Securing the NDIS for Future Generations) Bill 2026 (the Bill), with a focus on rural equity, psychosocial supports and thin/failed market safeguards for our regional, rural and remote (hereafter rural) communities.

The Alliance is the peak body for regional, rural and remote health in Australia, comprising 56 member organisations which include healthcare, disability and ageing professionals, service providers, health and medical educators and trainers, researchers, medical and health practitioner students, the Aboriginal and Torres Strait Islander health sector and organisations that deliver care for rural and remote Australians.

Our vision is for healthy and sustainable rural communities, which make up the more than 7.4 million people residing outside our major cities, or approximately 30% of the Australian population. We are focused on advancing rural health reform to achieve equitable and flexible health funding and care access equivalent to that of urban per capita spending. Equitable healthcare access and health outcomes should not be determined by a person’s post code.

The Alliance has outlined recommended amendments and implementation safeguards needed to prevent rural, regional and remote Australians with disability, including psychosocial disability, being left with less access and less of the allocation of funding, less choice, shorter life spans, greater burden on carers in particular women and greater administrative burden.

Summary of Key Issues of Concern for the National Rural Health Alliance

The Alliance supports a sustainable National Disability Insurance Scheme (NDIS). Sustainability, however, cannot be achieved by shifting cost, complexity and risk onto people who already face limited service markets. In addition, reviews have been noticeably clear about rural people receiving inequitable disability and health funding and services resulting in major disparities in care and support options, and resulting reductions in safety,

T 02 6285 4660    E nrha@ruralhealth.org.au  W ruralhealth.org.au         NRHAlliance

PO Box 475 Curtin ACT 2605

ABN 68 480 848 412   ACN 620 779 606   ARBN 620 779 606

Submission 367

dignity, and the opportunity to thrive for many rural Australians with as disability.1 Further, there have already been reductions to travel allowances for allied health providers and this impacts rural providers and rural people with a disability disproportionately.2

The rural equity test for the Bill is simple: no person with a disability living in Australia should lose fundamental access to support because the legislation assumes the existence of a functioning service market that is not available in their community.

The Bill proposes major changes to access, functional capacity assessment, support determinations, plan renewals, unscheduled reassessments, permanence criteria, plan, suspension, and support budgets. In metropolitan areas, some changes may be mitigated by provider density, advocacy capacity, transport, and market alternatives. In rural, regional, and remote Australia, these mitigations are often absent. This results in a disproportionate increase in the risk profile the associated with implementing these legislative changes in rural Australia.

The proposed changes raise concerns about fairness, safety, and equity in how people with disability access and sustain supports. Alliance members have expressed concerns that several provisions would shift significant decision-making power to a Minister or Agency without adequate safeguards, transparency, or accountability. This creates a risk that funding decisions such as setting caps, redefining “reasonable and necessary” supports, or imposing broad determinations could override individual needs, inequity amongst the Australian public for political gain and undermine the principle that supports should be tailored to enable participation, independence, and long-term wellbeing. These issues would be exacerbated for people with a disability who live in rural Australia.

A further concern is that the proposals place undue weight on narrow or inaccessible forms of evidence and service availability, which risks entrenching inequity. Requiring participants to exhaust all “appropriate” treatments, or privileging peer-reviewed research over lived experience and other forms of evidence, does not reflect the realities of disability support. This is particularly relevant in rural, remote, or underserved areas where services may be unavailable, unaffordable, or unsupported by a strong research base. Similarly, reliance on alternative support systems assumes these are equivalent and accessible, which is often not the case, particularly in thin markets where service options are limited or non-existent.

The risk is not theoretical: reform without funded alternatives creates a service cliff.

The Alliance has received feedback concerning the unintended consequence of fragmentation in care pathways if the Minister is granted the power to make support determinations that may result in participants receiving funding below what has been assessed as reasonable and necessary.

The National Rural Health Alliance therefore urges the Senate Committee to recommend that the Bill not proceed in its current form unless rural safeguards, psychosocial support funding, transparent data obligations, and thin-market commissioning mechanisms are built into the legislation or binding implementation instruments.

1 See Joint Standing Committee on the National Disability Insurance Scheme Inquiry into NDIS participant experience in rural, regional, and remote Australia (2024 -2025); The National Rural Health Alliance report: The Forgotten Health Spend: A Report on the Expenditure Deficit in Rural Australia (2025). 2 National Rural Health Alliance (June 2025) Media Release: Proposed NDIS travel allowance cuts, a blow to rural providers and people with a disability (available at ruralhealth.org.au). 2

Submission 367

Why the Senate Committee must apply a rural equity lens

The Alliance holds concern that the Bill is being considered on an accelerated timetable. This creates a high governance risk for rural Australians because the practical effect of NDIS reform will be determined not only by eligibility language, but by the actual availability of providers, transport, allied health workforce, advocacy, digital access, and psychosocial supports in local communities. The Alliance has prepared the table below to illustrate the nuances of rural equity issues and the importance of the Senate Committee applying a rural equity lens.

Rural equity issue         Reality on the ground                   Risk under the Bill

Service market failure     Thin markets mean some participants    Budget reductions or narrower access

have funding, but no provider, or only rules may reduce nominal expenditure one provider with limited capacity. while increasing unmet need, hospital reliance, carer strain, and crisis presentations.

Travel and transport     Long distances and lack of accessible     Support that is “available” in a city may

burden                   transport raise the cost and time        be functionally unavailable for a remote

required to access support. participant.

Shared workforce          Allied health, disability, aged care, and   Reforms in one system can destabilise

across sectors           primary care draw from the same        the others unless workforce planning is

limited rural workforce. aligned.

Information and         NDIS access and reassessment are        Tighter reassessment and record-

advocacy deficit          harder where there is limited local       keeping rules may disproportionately

navigation, legal advice, and advocacy. exclude rural participants.

Psychosocial support    A large national unmet need exists      Moving people toward “foundational” or

gap                      outside the NDIS, with poor granularity   mainstream support before those

on rural need. supports exist will create a service cliff.

Assessment of key Bill elements through a rural lens

The following table further analyses critical components of the Bill, outlining potential benefits, risks and safeguards which must be considered to mitigate potential implementation concerns.

Bill element        Potential benefit      Rural risk                       Required safeguard

Functional          Standardised,         High risk if tools are not validated   Require independent rural

capacity access     evidence-based         in rural, remote, First Nations and   validation; provide specific

test              assessment may        culturally diverse contexts.         funding for assessment-

improve consistency.   Additional potential risk if          related evidence; allow

assessment access requires telehealth plus outreach; specific allied health evidence embed cultural safety and that may be unavailable in some communication supports. communities due to ongoing limited workforce availability.

3

Submission 367

Bill element        Potential benefit      Rural risk                       Required safeguard

Limits on        May reduce           Rural participants may             Define rural provider

unscheduled plan   administrative churn.  experience sudden provider loss,   withdrawal, transport

reassessments                             carer collapse, floods, fires,         collapse, disaster impact, and

relocation, or workforce carer burnout as valid withdrawal which all impact reassessment triggers. perception of plan usage and do not fit narrow criteria quickly enough.

Support         May target areas of   Community participation and     No reduction in MMM4-7

determinations     over-spend or          capacity-building are not             until substitute support exists

reducing groups    inconsistent use.       discretionary extras particularly    and local market adequacy is

of supports                                   in rural areas; they prevent        independently verified.

isolation, crisis, and premature institutional reliance.

Plan end dates     Could improve        Underspending in rural plans       Exclude demonstrable thin-

and no carry-over  budget discipline.      often reflects lack of providers,    market underspend from

of unspent funds                        not lack of need. Removing         negative assumptions; allow

unspent funds penalises thin- protected carry-over or market failure. alternative commissioning.

Plan suspension   May assist integrity    Participants with poor             Require multiple accessible

after failed        and administration.    connectivity, unstable housing,     contact channels, trusted

contact                               mental illness, cognitive             local intermediary checks and

disability, family violence, or an independent rural remote travel may be wrongly hardship safeguard before suspended. suspension.

Permanence and    Clarification can       For psychosocial disability and    Do not treat unavailable rural

treatment         improve scheme      complex conditions, treatment     treatment as refusal or

requirements      boundaries.           access is uneven, and                 failure; require evidence of

“appropriate treatment” may not practical access, not be available locally. theoretical availability.

Support needs      Potential for fairer        If environmental factors are       Mandate rural environmental

assessment / new  planning if well-       underweighted, rural people will    loadings: travel, workforce

framework         designed.             get plans that look fair on paper     scarcity, provider wait time,

planning                               but fail in practice.                   cultural safety, transport, and

disaster risk.

Psychosocial disability and community support: the service cliff risk

The Alliance has noted commentary outlined in Croakey Media raising concerns from disability advocates and mental health researchers that the NDIS Impact Analysis is a blunt instrument unless read against lived experience, thin markets, psychosocial support gaps and implementation realities. 3 The Senate Committee should treat these concerns as a warning signal: reforms focused on budget control can increase downstream cost if people lose early, practical and community-based supports.

The Commonwealth-funded psychosocial unmet-need analysis reveals very concerning statistics. It estimated that, in 2022-23, 647,300 people aged 12-64 with moderate or severe mental illness required psychosocial

3 Croakey, NDIS Impact Analysis a “blunt instrument” and Bill will cause harms if not amended, May 2026.

4

Submission 367

support. Of this total, there were 493,640 people who were not receiving psychosocial support. Among people aged 65 and over, 133,270 were not receiving needed psychosocial support. For people aged between 12-64 who experience severe mental illness, the sensitivity analysis estimated with high confidence that between 214,800 and 238,7 people required but were not receiving psychosocial support.4 This also highlights potential unintended consequences of limiting services and creating fragmentation related to transitioning people from NDIS to Aged Care packages, which is out of scope of this Bill.

The Alliance notes that these figures represent a national overview, and there is value in aggregating the data via rurality to strengthen the understanding of how rural areas are impacted by limited psychosocial support services.

National Rural Health Alliance Recommendations to the Senate Community Affairs Legislation

Committee

  1. Amend the Bill to require a Rural and Remote NDIS Equity Impact Statement before each major rule; support determination, access instrument or assessment tool is commenced. The Statement should assess impacts by Modified Monash Model (MMM) category, First Nations status (where appropriate), disability cohort, age, psychosocial disability, market adequacy, workforce, provider availability, and transport burden.

  2. Insert a no-detriment safeguard for participants in MMM 4-7 areas where alternative support or providers are not demonstrably available.

  3. Delay support budget reductions for social, civic, community participation and capacity-building activities in thin markets until locally commissioned alternatives are operational and independently verified. Community connection is a preventive health intervention in rural areas, not a luxury line item.

  4. Fund a national rural psychosocial support guarantee, including non-clinical community psychosocial supports for people with severe and moderate mental illness, who are not NDIS participants and transitional protection for people with psychosocial disability currently relying on NDIS supports. This should include transparent Commonwealth and State/Territory responsibilities and rural commissioning targets and rural loadings.

  5. Legislate rural data transparency: NDIS participation, plan utilisation, provider availability, wait times, reassessment outcomes, appeals, suspensions and market gaps to be reported by remoteness, MMM category (not state-level averages), First Nations status (where appropriate) and disability type, with privacy protections.

  6. Create a Rural Thin /Failed Market Commissioning Fund that allows block, blended, outreach, salaried and pooled workforce models rather than assuming individualised market purchasing can solve supply failure, or funding can be saved or redistributed to urban centres. Commissioning should include local non-clinical support through community organisations, Aboriginal Community Controlled Health Organisations, rural health services, peer organisations and outreach models.

  7. Require NDIA to co-design implementation with rural people with disability, First Nations communities, local providers, health services, PHNs, local government and rural peak bodies before rural implementation. The Alliance is well placed to support NDIA in this action.

  8. Do not penalise rural underspend caused by provider shortages. Plan underspends should be interpreted through a thin-market lens. Where participants cannot use funds because there are no providers available, the remedy should be market stewardship or alternative commissioning, not budget reductions, or a finding of lower need.

4Health Policy Analysis Pty Ltd (2024) “Analysis of unmet need for psychosocial supports outside the NDIS Final Report, August 2024. 5

Submission 367

  1. Make functional capacity assessment rural-proof. Assessments tools must be validated for rural and remote conditions, First Nations cultural contexts, psychosocial disability, and fluctuating conditions. The Federal Government must provide accountability and fund the evidence-gathering burden, including allied health reports, travel, telehealth, and outreach.

  2. Build a rural disability navigation workforce. Fund trusted local navigators embedded in rural health, community, First Nations, and disability organisations to help people understand access, reassessment, claims, records, appeals, and service options.

  3. Embed cross-sector workforce planning. The NDIS, health, aged care, mental health, and primary care reforms must be planned together in rural areas because they rely on the same limited workforce. There should be a joint rural workforce implementation plan across Government portfolios and States/Territories.

  4. Create an independent rural oversight mechanism. This could take the form of an independent rural NDIS implementation advisory group which should report publicly to Ministers and Parliament every six months for the first three years of reform implementation.

Implementation roadmap requested of Government

To assist the Committee, the Alliance suggests the following timeframes for implementation of the key recommendations and directions proposed in this submission:

Timeframe Action

0-180 days Publish rural implementation risk register; establish rural NDIS advisory group; release draft Rural Equity Impact Statement template; identify high-risk MMM4-7 locations; pause any support budget reset in thin markets. 6-12 months Map provider availability, plan utilisation and unmet demand by remoteness; design psychosocial support guarantee; fund rural navigators; commence co-design with First Nations and rural disability organisations. 1-2 years Launch Rural Thin Market Commissioning Fund; commission psychosocial supports in priority rural regions; publish baseline rural NDIS equity dashboard; validate assessment tools in rural settings. 2-3 years Independent evaluation of rural safeguards; adjust funding loadings; report on plan utilisation, reassessment outcomes, appeal rates, suspensions, and provider supply; scale successful models nationally, review workforce development and status.

Risks - if the Bill proceeds without amendment

There are inherent risks if the Bill is passed in its current form. The following summarises some of these risks, consequences, and mitigation strategies:

Risk rating        Risk                     Consequence                 Mitigation

Red - high        Support reductions occur     Loss of community             Legislate no-detriment

before alternatives exist      participation, increased       safeguard and staged

isolation, carer burden, commencement after local inequity of service delivery, adequacy test. deterioration, and crisis presentations.

Red - high        Psychosocial support cliff    People with mental illness    Fund rural psychosocial

fall between the cracks of a guarantees before access or fragmented NDIS, mental support restrictions affect this health, and community cohort. system. 6

Submission 367

Red - high         Thin/failed market           Plans are reduced because    Mandatory underspend

underspend misread as      support cannot be           reason codes and thin/failed-

lower need, funding shift    purchased locally.           market exception process.

to urban Australia Ensuring funding allocation continues. Lack of does not move to urban expenditure seen as a cost- centres or as a saving saving opportunity by opportunity, by ignoring Government, at expense to market or policy failure members of the community

Amber -         Assessment tools            Functional capacity decisions  Independent rural validation

medium/high     underweight for rural and      fail to capture travel,        and environmental loading.

remote context provider scarcity, cultural safety, and environmental barriers.

Amber -          Plan suspension due to       Participants with poor         Local intermediary check and

medium/high      failed context and contract   connectivity or complex       hardship review before

circumstances lose access suspension. unfairly. Review flexibility to deliver like care

Amber –          Provider consolidation, (or   Plan management or          Rural market impact review

medium           lack of consideration to      support co-ordination        and exemptions where

grow local workforce via     reforms shrink rural provider  provider choice is limited or

health workforce            base.                          non-existent. Reviews show

strategies) reduces local reason for lack of market and choice longer-term workforce growth projections.

Green -          Commissioning enables     Fund local capacity building   Use block/blended funding

opportunity       better local models            activities to improve rural     and local governance to build

access rural service capacity.

Conclusion:

The Alliance urges the Senate Committee to avoid a false trade-off between sustainability and equity. The NDIS must be financially sustainable, but it must also be accessible. Rural Australians have already received less healthcare and disability access than urban population, resulting in less care, earlier deaths, and elevated stress. People with disabilities in rural Australia face thinner or no markets, fewer providers, higher travel costs, worse health care and health status and more complex, inflexible, and fragmented navigation. Reform that assumes a metropolitan service base will widen inequity and is not a true cost-saving opportunity.

The Senate Committee can convert the Bill from a budget-control instrument into a genuine stewardship framework. This requires enforceable rural safeguards and mechanisms to manage appropriate utilisation, and ensure funded psychosocial support, transparent data and commissioning tools that build supply where markets have failed.

These changes to short, medium, and long-term supply can be dealt with in conjunction with Department of Health, Disability and Ageing health and medical workforce plans, strategies, and action. Indeed, in rural Australia many clinicians already work across health, aged care, and disability. 7

Submission 367

Without those changes, the Bill risks moving costs to other overburdened areas. At a systems-level, this would move from the NDIS ledger to hospitals (when rural hospitals are already underfunded). At a personal level, this shift would greatly impact carers, families, communities and above all, people with disabilities themselves.

I thank you Senator Cox and Legislation Committee for the Inquiry and would be pleased to provide further information on any of the information contained in this submission if required.

Yours sincerely,

Susi Tegen

Chief Executive

8

Submission 367

References used in the development of this Submission

Australian Government. Independent Review into the NDIS. Foundational support for all people with disability fact sheet. 7 December 2023. https://www.ndisreview.gov.au/resources/fact-sheet/foundational-supports-all people-disability

Australian Institute of Health and Welfare. People with disability in Australia 2024: Access to health services. Published 23 April 2024. https://www.aihw.gov.au/reports/disability/people-with-disability-in australia/contents/health/access-to-health-services.

Australian Institute of Health and Welfare. Rural and remote Australians: Overview. Updated 20 November 2025. https://www.aihw.gov.au/reports-data/population-groups/rural-remote-australians/overview

Health Policy Analysis. Analysis of unmet need for psychosocial supports outside of the National Disability Insurance Scheme: Final Report. Prepared for the Department of Health and Aged Care, August 2024. https://www.health.gov.au/sites/default/files/2024-08/analysis-of-unmet-need-for-psychosocial-supports outside-of-the-national-disability-insurance-scheme-final-report.pdf

National Rural Health Alliance. Disability and access to the NDIS in rural Australia. Fact sheet. February 2023. https://www.ruralhealth.org.au/wp-content/uploads/2024/05/nrha-disability-factsheet-feb-2023-final.pdf

National Rural Health Alliance. Submission to the Joint Standing Committee on the National Disability Insurance Scheme inquiry into the capability and culture of the National Disability Insurance Agency. 12 October 2022. https://www.ruralhealth.org.au/wp-content/uploads/2024/11/national-rural-health-alliance-submission-inquiry capability-and-culture-ndia.pdf

National Rural Health Alliance and Office of the National Rural Health Commissioner. Submission to the Joint

Standing Committee on the National Disability Insurance Scheme Inquiry into the NDIS participant experience in rural, regional and remote Australia. March 2024. https://www.ruralhealth.org.au/policy/submission/joint standing-committee-on-the-national-disability-insurance-scheme-inquiry-ndis-participant-experience-in-rural regional-and-remote-australia/

National Rural Health Alliance, with NOUS Group The Forgotten Health Spend: A Report on the Expenditure Deficit in Rural Australia. 2025 https://www.ruralhealth.org.au/the-forgotten-health-spend-report/

Office of Impact Analysis, Department of the Prime Minister, and Cabinet. National Disability Insurance Scheme

Reforms. Published 14 May 2026. https://oia.pmc.gov.au/published-impact-analyses-and-reports/national disability-insurance-scheme-reforms

Croakey Health Media. NDIS Budget reforms fail at first step on First Nations, rural and remote, psychosocial supports. May 2026. https://www.croakey.org/ndis-budget-reforms-fail-at-first-step-on-first-nations-rural-and remote-psychosocial-supports/

Croakey Health Media. NDIS Impact Analysis is a “blunt instrument” and Bill will cause harm if not amended. May

  1. https://www.croakey.org/ndis-impact-analysis-a-blunt-instrument-and-bill-will-cause-harms-if-not- amended/

9