NDIA Accountability Project

Family struggles to afford specialist care for child with complex needs

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 3822

What would happen if your social and community supports were cut?

NDIS cuts kill - suicide rate higher - UQ research shows autism life expectancy up to 54 years.

Value of human life - reminder double murder suicide in WA after family funding cut in early 2026.

What would happen if your capacity building supports disappeared?

Single income for family of 4 living in Sydney - parent unable to work for ongoing specialist & therapy appointments, responsibility & supervision for non school hours (IEP - 2 hours 2 days per week school contact).

More out of pocket expenses for specialist reports to prove lifelong disability and early interventions for high needs support neurodivergent teen aged 16 years - Level 3 Autism, ADHD, Dyspraxia, MDD, ODD, PDA/ODD/RSD profile, COCSA, extreme school refusal (School Can’t), bullying since preschool, gender identity change, SI/self harm, medications.

Push participants onto other burdened health systems & services eg hospitals, therapies etc (lived experience - gap in teen support services from 10-18 years) - costing Government more in the long run - pushing problem down the track to future when cost of supports & services will be higher and situation worse eg increased addictions, higher unemployment, housing shortages, mental health rises etc. Spend Now Save Later!

Break our family - pressure and lack of ongoing supports will split families already at breaking point.

Future insight - Younger generation unable to afford a family or house - decline in population and now living longer to 100 years (Thank me for prediction later!).

Access & Eligibility: The process for determining entry into the NDIS using new early intervention and disability requirement streams.

  • Please READ very expensive, multiple specialist reports.

  • Thriving Kids program announcement reminder - not include existing NDIS participants only new participants until rolled out - another broken promise.

  • Please release in advance!

Definition of NDIS Supports: New parameters clearly outlining what can and cannot be funded to ensure the sustainability of the scheme.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 3822

  • One size does not fit all - individual needs - what works for one does not work for everyone.

  • We are living in a different world - please keep up with the times and learn from past not go backwards!

New Framework & Budgets: Transitioning participants to a budget-based framework and updating plan management, reassessment processes, and participant spending obligations.

  • Provide before assessments in a timely manner - not on review date.

  • More flexible funding periods - when supports needed most (lived experience - IEP and school holidays requires more support hours while parents at work).

  • Funding rates for support workers to align with standard base rate set by agencies eg Mable, Hire Up etc (currently gap in award - funding does not cover hours provided in plan).

  • Support workers require minimum 2 hours engagement contract - workers need set hours and job stability - lived experience 1.5 hour blocks for morning and afternoon does not cover it & family out of pocket to engage for minimum hours requirement by agencies and approved individuals (registered business).

  • Please note long waiting times for specialist appointments and long holiday period over Christmas & new year - majority specialists on leave from mid December to end January in line with extended Summer school holiday period.

  • Please streamline process for review and funding adjustments based on individual needs evidenced by very expensive specialist reports (NDIA admitted in February 2026 reports not read).

Regulatory Compliance: Imposing strict conditions on approved quality auditors, expanding NDIS Commission powers to enforce banning orders, and preventing fraud and exploitation.

  • What are the rules? Please explain!
  • Transparency.

SHAME SHAME SHAME

Put the D for Dignity back into the NDIS!