Impact of NDIS changes on son and grandson with Autism and genetic disorder (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 394

From: Sent: Tuesday, 19 May 2026 2:10 PM To: Subject: Objections to the Changes to NDIS

Dear Committee,

My name is I am 65 years old. I live in Armidale NSW.

I am writing to express my opposition to the proposed changes to the NDIS. I also want to emphasise that I have not been able to engage with this process to the extent that I would like because only two weeks has been given to provide submissions.

My adult son and 10-year-old grandson are both currently receiving support through the NDIS. My son is a wheelchair user with a genetic disorder affecting his mobility. He’s also Autistic. So is my grandson. My son went through a 3 year fight with the NDIA to get the right supports because at first they wanted to give him totally inappropriate supports because they told him he could only get funding for Autism. I understand that this bill will make these kinds of errors more common and harder to fix.

I am deeply worried that the proposed changes will impact both my son and grandson significantly, reducing their quality of life, independence and ability to have normal lives like any other Australian. The inevitable consequence of losing NDIS support will be that they rely more on me. I’m not getting any younger.

Like any other adult, my son wants to be able to live as independently as possible. He currently has support workers who he knows and trusts. He should be given the dignity to choose who supports him.

I understand the proposed changes mean that NDIS plans will no longer be fit to individual lives but will instead emphasise ‘fairness between participants’ and ‘financial sustainability.’ I also understand there will be lots more automation in the NDIS. This is a very impersonal and bureaucratic way to deal with already vulnerable people. Support needs to be based on an individual assessment and centred on the needs of each person, not left up to Claude or ChatGPT.

I understand the government does not have unlimited funds and the NDIS has a ballooning budget, but rather than taking this from the end-user i.e. those people with the disability; perhaps you could seek to target fraudulent providers, administrative errors and incompetent bureaucrats. You could also try taxing gas companies and quitting the subsidies to fossil fuel companies.

Once again I voice my clear objection to the proposed changes to the NDIS and ask that it is reviewed more carefully to ensure that the impacts do not lead to disastrous consequences for my son and grandson and for the many other Disabled people who rely on the NDIS.

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 394

She/her

The best way to be sustainable is to use what you already have.

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