Brother’s essential care at risk due to NDIS funding cuts

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 3961

Re: Annual plan deficit is strictly in essential human care

I am writing to inform the inquiry of the ongoing reductions to my brother’s NDIS plan and express grave concerns regarding systemic shifts toward large-scale Supported Independent Living (SIL) arrangements.

My brother lost a frontal lobe in a school bus accident and has permanent, profound, high-intensity care needs: he has paralysis, is unable to stand, toilet himself, prepare food, or leave his home without physical carer support. His needs are increasing, not decreasing and despite this, his plan value is lower than it was three years ago, causing his core care funds to deplete before the end of each plan cycle. At which point we have no choice but to admit him to hospital for his care. He is not utilising discretionary funds for luxury equipment or therapies; his deficit is strictly in baseline, essential human care.

We strongly object to any funding or policy changes designed to force him into larger group home settings for the following reasons:

  • Historical Failure: Prior to the NDIS, my brother was placed in a large group home. Because he has a passive, quiet temperament, his high-care needs were consistently neglected in favour of managing louder, more high-behaviour clients.

  • Current Success: He currently resides in a highly successful two-participant house. He and his housemate are deeply compatible, and his health and well- being have thrived under this model. Forced relocation would actively regress his development and breach the NDIS principle of choice and control.

The current budget sustainability measures are targeting the wrong people. The financial blowouts in the scheme were driven by allowing children with mild developmental delays to join the NDIS, provider price-gouging and unscrupulous equipment suppliers—not by passive, high-needs participants requiring basic and essential daily support.

He needs a review of his current funding allocation now to ensure his core care hours are fully restored and that his stable, two-person SIL arrangement remains protected. He needs that even before the proposed cuts to the NDIS.

What will happen to him after the budget has stripped even more of his basic daily supports?