National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 4055

RE: NDIS inquiry

To whom it may concern,

My name is , I am writing to you to share my experience with NDIS and how it has negatively affected every part of my life and support regarding my current NDIS plan. I am 26 years old and live with two approved and diagnosed disabilities: an intellectual disability and schizophrenia.

I grew up in a culture where disability was treated as taboo and a source of embarrassment. Because of this, I did not receive the early intervention that would have improved my condition. Throughout my schooling years, I was severely bullied due to my disability, which caused long‑lasting emotional harm. This pattern continued into adulthood, where I experienced bullying in the workplace, creating further trauma and significantly impacting my ability to maintain stable employment and make or retain friendships.

In my early twenties, I was formally diagnosed with schizophrenia, a diagnosis that brought immense emotional distress. I have struggled deeply with feelings of having disappointed and shamed my family, and this has contributed to ongoing mental health challenges.

Recently, a second disability was added to my NDIS plan, yet despite now having two disabilities, the review process somehow resulted in my funding being reduced. I cannot express how distressing it was to receive this news. This reduction includes the loss of my Support Coordinator who is vital to the management of my supports; I can’t navigate the NDIS system as well as manage the various supports and therapies I need so badly. Due to my disabilities, the responsibility of managing this process independently, and the complete lack of guidance and/or advocacy has left me overwhelmed and unsupported.

A significant portion of my previous funding was spent on reports requested by the NDIS. Once submitted, I was told that these reports were “insufficient” or “missing key information”. How can I take any action to this response? What does that mean? In the reduction of my funds, I now no longer have any resources to have new reports written or old ones changed.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 4055

As a result of these losses, I am currently experiencing severe depression, feelings of worthlessness, isolation, and abandonment. I require assistance with cooking, cleaning, community access, social interaction, attending appointments, and ongoing therapy. Without these supports, my wellbeing continues to decline.

I am deeply struggling due to the fact i have insufficient supports and I have no clue how to change that.

Thank you for taking the time to hopefully understand the seriousness of my situation.

Sincerely,