Dear Committee Members,

My name is , and I live in Adelaide. I have been an NDIS participant since 2020 due to Relapsing Remitting Multiple Sclerosis, which has now progressed to non- relapsing Secondary Progressive Multiple Sclerosis.

I am writing to you regarding the NDIS Future Generations Bill 2026 because the NDIS is essential to my safety, independence, and quality of life.

I am asking you to oppose the Bill in its current form, particularly the new “all appropriate treatments” test, the new functional capacity test, the loss of review rights, the cuts to community participation, and the restrictions on self-management.

Since becoming a participant, I have always provided full clinical evidence and documentation of my condition and I now have a collaborative team of Allied Health Professionals who know me and my needs very well. This has taken time to find my support team and by bringing in independent assessors who do not know me, and forcing scheduled reassessments that I cannot appeal, is unfair and dangerous for people with progressive diseases like mine.

My MS is degenerative — meaning my needs increase over time — and my supports must remain flexible, personalised, and stable.

I am also a mother and nominee for my son who is also an NDIS participant. I want to share a story about my son, who has autism and an intellectual disability. A provider once removed me as his plan nominee without my knowledge so they could gain more coercive access to his plan and funding. It was an extremely distressing experience and showed how vulnerable people with disability are when systems allow external assessors or providers to override the voices of families and trusted supporters.

My own experience with agencies has also been difficult. Transitions have not been smooth, many agencies lack transparency, and support workers are often poorly managed — leaving shifts early, refusing tasks they “don’t want to do,” and providing support that is not person-centred. This is why the ability to choose my own private support workers, based on trust, compatibility, and reliability, is essential to my wellbeing.

I also rely on community participation to stay connected and mentally well. Cutting this funding by 50% ignores the reality that people are unique and need different types of community involvement, not generic activities chosen for them.

I am asking the Committee to recommend that the Senate reject the Bill unless these harmful measures are removed, and to protect the rights of people with progressive and permanent disabilities to maintain stable, personalised supports without fear of losing them. I would appreciate a written response outlining your

Sincerely,