Impact of proposed changes on participants with fluctuating disabilities

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PWDA Template: Submission to the

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Attention: Committee Secretary, Senate Standing Committee on Community Affairs

Submitted by email: community.affairs.sen@aph.gov.au

Date: 27th May 2026

I welcome the opportunity to make a submission to the Senate Standing Committee on Community Affairs about the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026.

I am a participant and also work as a business manager for a registered behaviour support provider in QLD.

I want to outline the harm this Amendment Bill will cause if it passes Parliament. This Bill is too far-reaching to pass as it stands. I believe the Bill requires further scrutiny and amendment before it proceeds.

Parliamentary Scrutiny and Transparency

The consultation period for the Amendment Bill is two weeks, which is insufficient to allow for appropriate consultation, considering accessibility and communication

needs.

The Australian Government Guide to Policy Impact Analysis says

consultation should occur for a minimum of 30 days where possible.

The short timeline impacts me by limiting available time for the consultation and

d therefore will not have a clear consultation with NDS participants. Consulting

timeframes of 30 day may work with big business and government however the

NDIS doesn’t even meet a 30-day timeframe for participants.

Recommendation: Amend the consultation period for a best practice to a minimum of 60 days.

Key decisions left to ministerial instruments, not law

The issue: The Bill allows Ministers to change who gets NDIS support (Schedule 1 Parts 8 and 9) and how much funding people receive (Schedule 1 Part 4; Schedule 3) by signing an instrument, without going back to Parliament. The rules that will determine critical eligibility thresholds (Schedule 1 Parts 1, 8 and 9) have not yet been written.

How this affects participants: The decisions that shape the lives of participants, whether they qualify for the NDIS and what supports they can access, could be changed without parliamentary debate or public scrutiny. Participants may not know that supports or eligibility rules have changed until their plan is affected.

Already, NDIS has challenges around assessments and the funding people receive. Removing oversight and public scrutiny will heighten the risk of the removal of funding for basic human rights of people with disabilities. This has got robo debt potential.

Recommendation: Require that all decisions affecting NDIS eligibility and funding levels be made through primary legislation subject to full parliamentary scrutiny, with mandatory advance notice to affected participants before any changes take effect.

**Existing participants face narrower criteria and fewer rights

to challenge decisions**

The issue: The Bill changes the rules for existing NDIS participants and makes it

harder to challenge some decisions about supports and funding. It also restricts

when you can request a reassessment, removes review rights for automatic plan

renewals, and makes funding reductions unreviewable (Schedule 1 Parts 1 and 8).

Combined with restrictions on reassessment requests (Part 2), automatic plan

renewals without review rights (Part 5), and unreviewable funding reductions (Part

4), existing participants face narrower criteria with significantly fewer avenues to

challenge decisions about their supports.

How this affects participants: This does not protect participants already on the

NDIS, who could be reassessed under stricter rules. If someone’s funding is reduced

or their plan renewed automatically, they may have limited or no ability to challenge

that decision. This could make it harder for people to get extra support when their

circumstances or disability change.

Some of the keep funding (Core) is not a choice we make. Without the ability to

adjust, funding will remove human rights from people. This can only have a negative

impact. So far, I am aware of at least two participants and families that have taken

their own lives over funding issues. I believe participant safety should be a good

reason for review of funding.

Recommendation: Require a “no harm” safeguard ensuring no current participant

loses access to supports unless equivalent supports are in place, with independent

review rights before any exit decision and access to unscheduled reassessments

preserved.

Unreviewable ministerial power to cut funding across all

support categories

The Minister can reduce funding for any support or group of supports by a specified percentage through an instrument that cannot be challenged (Schedule 1 Part 4).

This applies across all budget categories. Unspent funds will no longer carry over at plan renewal (Schedule 1 Part 5).

How this affects participants:

A participant’s community participation, capacity building or assistive technology funding could be cut without warning and without any right to appeal. Participants who save unspent funds across plan periods for high-cost items will lose that ability entirely.

If capacity building could be cut without warning or right to appeal, who does the risk sit with? Clients with behaviour support are complex, high-risk participants. Who is going to provide the skill-building to reduce the risk to themselves and the community?

Recommendation:

Require that unspent funds carry over at plan renewal for participants saving for high-cost items and require independent review rights before any funding reduction takes effect.

Requirement to exhaust treatment options before eligibility

The issue:

A person with disability will need to exhaust treatment options before they can be eligible for the Scheme (Schedule 1 Part 8). There will also be a removal of whole-of-person assessment, replaced by single eligible impairment consideration (Schedule 1 Part 3). The note that previously acknowledged environmental factors and other ineligible impairments could affect support needs will be removed (Schedule 1 Part 3).

How this affects participants:

People with disability will need to prove their impairment cannot be treated before they access the NDIS. Once in the scheme,

their supports will only be assessed against a single eligible impairment rather than

their whole experience. A person’s individual circumstances will not be considered, including ability to pay for treatment, where they live or whether treatment is actually available to them.

II have multiple medical diagnoses and as much as one is stable, others fluctuate depending on weather conditions, my body’s complex health and the overall impact can be devastating. If the NDIS is not taking my individual circumstances into consideration, I will not be able to work. Currently, I am able to work due to the NDIS building my capacity over many years, the support I receive at my workplace and informal supports. Saying this, I have had many periods in my life where all of these informal supports were not available. My quality of life was not good. Life is not the same for anyone over their lifetime not medically, emotionally and physically. Who can deny that this is not be a consideration?

Recommendation: Do not proceed with a requirement to exhaust “appropriate” treatment options – there are no safeguarding measures around participant harm due to side effects or complications, a participant’s financial ability to pay, or their geographic capacity to access treatments.

Unvalidated functional capacity assessment tool risks misidentifying need

The issue: The Bill shifts assessment from whole-of-person consideration to a single eligible impairment (Schedule 1 Part 3). Read together with the eligibility thresholds in Parts 8 and 9, the tool used to conduct functional capacity assessments must be capable of sufficiently identifying whether a person meets the threshold for that single impairment.

The named assessment tool is the Instrument for Classification and Assessment of Support Needs (I-CAN). I-CAN requires validation to ensure it will sufficiently identify the needs of all people with disability, including those whose needs may be 5

fluctuating or episodic and may not be captured through a point-in-time assessment,

and to ensure it is culturally appropriate for First Peoples with disability.

How this affects participants: If the assessment tool does not accurately capture the full extent of a person’s disability, including needs that fluctuate or vary over time,a participant may be found ineligible or have their supports undercounted, with no guarantee the result reflects their actual experience.

Whilst I am aware of the I-CAN assessment, my concerns are around the experience and knowledge of the person doing the assessment. What their qualification are and what lived experience they have had. It has always been challenging to assess for capacity of a person with a disability however, everyone is different and this assessment has limitations to provide a person-centred assessment. I also am not happy to pay and OT for an FCA for thousands of dollars however NDIS needs to ensure we are not removing peoples ability to meet their disability needs.

Recommendation: Do not proceed with I-CAN as the functional capacity assessment tool unless it has been demonstrably validated to identify the needs of all people with disability, including those with episodic or fluctuating disability, and demonstrated to be culturally appropriate for First Peoples with disability.

Supports cut before replacement system is ready

The issue: From 1 October 2026, the government has announced funding for social, civic and community participation supports will be cut by 50 per cent and capacity building daily activities by 10 per cent for all participants, reductions that will be implemented through the ministerial instrument power in Schedule 1 Part 4. The Foundational Supports system intended to fill that gap has no confirmed implementation date and is not yet operational.

How this affects participants: Supports that help participants connect with their community, build skills and maintain independence may be cut before anything exists to replace them, leaving carers and families with greater responsibilities and

This has an impact on people with a disability, including myself. If we support people with a disability to build capacity long-term, this will reduce the need for high level support. Action about SW funding could be outlined more specifically and increase registration for all services providing CB to ensure the best use of funding and compliance.

Recommendation: Require that no reductions to community participation or capacity building supports take effect until Foundational Supports are fully operational, adequately funded and demonstrably able to meet the needs of those who will lose NDIS supports.