Impact of proposed Bill on supports for an adult stepson with multiple disabilities

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PWDA Template: Submission to the

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Attention: Committee Secretary, Senate Standing Committee on Community Affairs

Submitted by email: community.affairs.sen@aph.gov.au

Date: 01 June 2026

I welcome the opportunity to make a submission to the Senate Standing Committee on Community Affairs about the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026.

I am both a person with disability and a carer of a person with disability.

I want to outline the harm this Amendment Bill will cause if it passes Parliament. This Bill is too far-reaching to pass as it stands. I believe the Bill requires further scrutiny and amendment before it proceeds.

Parliamentary Scrutiny and Transparency

The consultation period for the Amendment Bill is two weeks, which is insufficient to allow for appropriate consultation, considering accessibility and communication needs. The Australian Government Guide to Policy Impact Analysis says consultation should occur for a minimum of 30 days where possible.

The short timeline impacts me by making me have to rush to lodge a submission

instead of giving ample time to further consider any impacts and the big picture. This

is especially difficult with executive functioning difficulties as a part of my disability therefore this process is less accessible to those who are likely most affected by the

proposed changes.

Recommendation: Amend the consultation period for a best practice minimum of 30

days.

Key decisions left to ministerial instruments, not law

The issue: The Bill allows Ministers to change who gets NDIS support (Schedule 1 Parts 8 and 9) and how much funding people receive (Schedule 1 Part 4; Schedule 3) by signing an instrument, without going back to Parliament. The rules that will

determine critical eligibility thresholds (Schedule 1 Parts 1, 8 and 9) have not yet been written.

How this affects participants: The decisions that shape the lives of participants, whether they qualify for the NDIS and what supports they can access, could be changed without parliamentary debate or public scrutiny. Participants may not know supports or eligibility rules have changed until their plan is affected.

Changes should be fully considered for their impact by people with lived experience of disability, not at the whim of ministers.

Recommendation: Require that all decisions affecting NDIS eligibility and funding levels be made through primary legislation subject to full parliamentary scrutiny, with mandatory advance notice to affected participants before any changes take effect.

Existing participants face narrower criteria and fewer rights to challenge decisions

The issue: The Bill changes the rules for existing NDIS participants and makes it harder to challenge some decisions about supports and funding. It also restricts

  • when you can request a reassessment, removes review rights for automatic plan
  • renewals, and makes funding reductions unreviewable (Schedule 1 Parts 1 and 8).

Combined with restrictions on reassessment requests (Part 2), automatic plan renewals without review rights (Part 5), and unreviewable funding reductions (Part 4), existing participants face narrower criteria with significantly fewer avenues to challenge decisions about their supports.

How this affects participants: This does not protect participants already on the NDIS, who could be reassessed under stricter rules. If someone’s funding is reduced or their plan renewed automatically, they may have limited or no ability to challenge that decision. This could make it harder for people to get extra support when their circumstances or disability change.

We have, for months, been trying to navigate the NDIS process as a family to obtain much needed support for my adult stepson who lives with multiple disabilities and requires and deserves support, without success. There is delay, after delay, after delay. The process is already too complicated and disadvantages those with disabilities around executive function. Adding extra layers of difficulty to access will further disadvantage truly deserving individuals from accessing required care and support.

Recommendation: Require a “no harm” safeguard ensuring no current participant loses access to supports unless equivalent supports are in place, with independent review rights before any exit decision and access to unscheduled reassessments preserved.

Unreviewable ministerial power to cut funding across all support categories

The Minister can reduce funding for any support or group of supports by a specified percentage through an instrument that cannot be challenged (Schedule 1 Part 4).

This applies across all budget categories

Unspent funds will no longer carry over at plan renewal (Schedule 1 Part 5).

How this affects participants:

A participant’s community participation, capacity building or assistive technology funding could be cut without warning and without any right to appeal. Participants who save unspent funds across plan periods for high-cost items will lose that ability entirely.

Recommendation:

Require that unspent funds carry over at plan renewal for participants saving for high-cost items and require independent review rights before any funding reduction takes effect.

Requirement to exhaust treatment options before eligibility

The issue: A person with disability will need to exhaust treatment options before they can be eligible for the Scheme (Schedule 1 Part 8). There will also be a removal of whole-of-person assessment, replaced by single eligible impairment consideration (Schedule 1 Part 3). The note that previously acknowledged environmental factors and other ineligible impairments could affect support needs will be removed (Schedule 1 Part 3).

How this affects participants:

People with disability will need to prove their impairment cannot be treated before they access the NDIS. Once in the scheme, their supports will only be assessed against a single eligible impairment rather than their whole experience. A person’s individual circumstances will not be considered, including ability to pay for treatment, where they live or whether treatment is actually available to them.

Disability often impacts every area of life and the experience of disability is also often impacted by many variables within life. It is completely misguided to look at and support just one aspect of impairment without regard to the whole picture and intersections with various other aspects of life of the person living with disability.

Recommendation: Do not proceed with a requirement to exhaust “appropriate

treatment“ options – there are no safeguarding measures around participant harm

due to side effects or complications, a participant’s financial ability to pay, or their

geographic capacity to access treatments.

Unvalidated functional capacity assessment tool risks misidentifying need

The issue: The Bill shifts assessment from whole-of-person consideration to a single eligible impairment (Schedule 1 Part 3). Read together with the eligibility thresholds in Parts 8 and 9, the tool used to conduct functional capacity assessments must be .capable of sufficiently identifying whether a person meets the threshold for that single impairment.

The named assessment tool is the Instrument for Classification and Assessment of Support Needs (I-CAN). I-CAN requires validation to ensure it will sufficiently identify the needs of all people with disability, including those whose needs may be fluctuating or episodic and may not be captured through a point-in-time assessment, and to ensure it is culturally appropriate for First Peoples with disability.

How this affects participants: If the assessment tool does not accurately capture the full extent of a person’s disability, including needs that fluctuate or vary over time, a participant may be found ineligible or have their supports undercounted, with no guarantee the result reflects their actual experience.

Functional capacity within many disabilities (such as Autism) varies across life according to many variables including stress, employment environment, hormonal fluctuations, relationships and more. Assessment tools need to allow for this reality.

Recommendation: Do not proceed with I-CAN as the functional capacity assessment tool unless it has been demonstrably validated to identify the needs of all people with disability, including those with episodic or fluctuating disability, and demonstrated to be culturally appropriate for First Peoples with disability.

Supports Cut Before Replacement System Is Ready

The issue: From 1 October 2026, the government has announced funding for social, civic and community participation supports will be cut by 50 per cent and capacity building daily activities by 10 per cent for all participants, reductionsthat will be implemented through the ministerial instrument power in Schedule 1 Part4. The Foundational Supports system intended to fill that gap has no confirmedimplementation date and is not yet operational.

How this affects participants: Supports that help participants connect with theircommunity, build skills and maintain independence may be cut before anythingexists to replace them, leaving carers and families with greater responsibilitiesand no additional support. These supports are often what help people stay visible,connected and safe.

People with disability need and have the right to the full experience of life, includingsocial participation. It is also important for social cohesion that people withoutdisability see those with disability out in the community so they can have theopportunity for empathy and understanding. These changes threaten to take us backto the old days where people with disability were locked away in homesandinstitutions and the rest of society could pretend they don’t exist.

Recommendation: Require that no reductions to community participation orcapacity building supports take effect until Foundational Supports are fullyoperational, adequately funded and demonstrably able to meet the needs of thosewho will lose NDIS supports.