To: Senate standing committee on community affairs
PO Box 6100
Parliament House Canberra
RE: Submission into Inquiry to NDIS amendments Bill 2026 Date: 1 June 2026
Dear Committee Secretary,
I am writing in response to changes to the NDIS in the amendments Bill 2026 (Safeguarding the NDIS for future generations).
I am a parent (and nominee under the NDIS) for my son who has a profound intellectual disability, permanent lifelong (Mowat Wilson Syndrome). We struggle to work and care for our son but are extremely grateful for the NDIS. Everyone we meet says the NDIS was designed for people like our son (non verbal, physical disability/wheelchair, needs help with every aspect from feeding and showering to safely navigating and forming friendships in the community - he does all this while with a happy disposition).
Consultation time I feel very concerned that there has been only a few weeks of consultation for such major changes. The Bill and amendment are over 400- pages and only introduced to Parliament on 14 May 2026. 2 weeks of consultation is not fair or just. Even for the big disability advocates organisations who we rely on. I cannot see they have had time to make submissions.
Reducing the number of people on the NDIS I fully agree with taking people off the NDIS who only have milder disabilities and mild autism so that we can make sure the NDIS is sustainable for future generations. The States should pick this up with programs like Thriving Kids.
Reducing Community Participation
I am very concerned and many parents are extremely anxious about reducing this line item a) without consulting with each individual and b) with the idea of govt powers of automatic reductions. How can we plan for this? It’s very concerning. I hope this is not going to apply to people with profound intellectual disabilities such as our son. The amount of $200 million for all of the people to use for it seems very small and probably won’t be transparently managed by those it is granted to, it’s back to the old system before NDIS of groups where they won’t be able to go out and participate easily in the community.
Reducing the change for appeal This also feels a bit extreme and everyone should always have a chance to appeal or at least escalate to supervisors for more rationale on decisions. There was a saying when NDIS launched of never being ’worse off“
Reports
I agree that there should be a reduction in number of reports for those with lifelong disabilities that are permanent. We spend a lot of money on these each year. For those non permanent disabilities I can understand that reports are probably needed.
Registering for NDIS
Can you please make sure that there are some form of Tiers of registration so individual sole traders who provide support can still do so. I do agree with registration for NDIS providers.
Costs
Can you please somehow look at the NDIS agreed costs as now everyone is charging the “NDIS rate” and costs continue to rise which uses more of the participants Plans. I think this needs looking at as I recall one support worker from Centacare said they were not passing these increases directly on to the workers yet the participant gets charged the new NDIS rates, so that needs to be looked at.
Positioning
I think the Government should start communicating more about how economic activity and work is provided by NDIS funding, ie: NDIS = Jobs. It’s not like other government health schemes that
just cost money. NDIS is helping the economy by funding small business (it must I’m sure be one of the #1 for start ups in the last decade), it supports carers across the whole country. Many who haven’t had opportunities before.
Kind regards,
Mother of NDIS participant, Brisbane