Threat of exclusion from foundational supports (Family or carer experience)

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Submission 437

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

Introduction and Submission Objection

My submission strongly objects to the sweeping cuts and structural alterations

introduced via the National Disability Insurance Scheme Amendment (Securing the

NDIS for Future Generations) Bill 2026 and the accompanying 2026–27 Federal

Budget measures. While the government frames these changes as “securing the

future of the scheme“, they constitute a devastating $37.8 billion contraction that

directly targetsthe independence and safety of myself and all othervulnerable

citizens on the insurance scheme.

By utilising details from my brother in law’s current NDIS plan, I hope this submission

will provide Parliament with a clear explanation of how these legislative measures

will dismantle the safety of my brother in law and other individuals with high-complex

needs. He has a severe intellectual disability, Level 3 autism spectrum disorder with

a pathological demand avoidance (PDA) profile, moderate anxiety, and

characteristics of PTSD.

Goal for the NDIS & Current Plan Goal – I support that the NDIS needs to be sustainable and last in the long term.

Plan - Currently maintains my brother in laws life and security for the next 5 years. It

was built upon comprehensive Functional Capacity Reports and Specialised

Disability Evidence, by practitioners who have worked alongside my family, recording

and submitting his NDIS required documents. This plan highlights the exact supports

that proposed cuts threaten to destroy.

pg. 2

Submission 437

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

How Changes in this Bill Directly Impact Me

From my perspective as his brother-in-law, I have seen firsthand the level of care,

structure, planning and specialised support required to keep him safe, stable and

connected to the community. The supports he currently receives through this

insurance scheme are not excessive, optional or “nice to have”, they are essential

safeguards that allow him and our family to function safely and sustainably.

To remove him from this scheme, or to significantly reduce his carefully structured

funding and specialised behavioural supports, will not create “sustainability.” It will

instead trigger immediate regression, heightened behavioural escalation, family

breakdown and an inevitable transition into far more costly crisis-based care

systems.

This Bill, if passed, will introduce structural changes that fundamentally undermine

his safety, wellbeing, independence and our family’s long-term stability. These

reforms are not abstract policy discussions to families like ours. They will have direct,

deeply personal and life-altering consequences for our daily lives, emotional

wellbeing, financial security and ability to continue supporting him safely.

As a family, we are particularly concerned about:

●​ The threat of exclusion from foundational supports.​

●​ The proposed 50% reduction to social and community participation funding.​

●​ Reductions to essential 24/7 1:1 support services.​

●​ The redefining of parental responsibility and informal care expectations.​

●​ The proposed 10% cut to Capacity Building – Daily Activities funding.​

●​ The removal of diagnosis-based access criteria in favour of standardised

assessments.​

pg. 3

Submission 437

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

The danger of removing or reducing these supports cannot be overstated. His

current funding and support arrangements exist because his needs are complex,

permanent and professionally assessed. These supports are preventative and

stabilising measures that keep him regulated, engaged with the community, and out

of crisis situations.

These changes will not reduce long-term costs. In reality, removing preventative

supports often results in crisis escalation. When people lose access to behavioural

supports, therapy and community-based care, the outcomes frequently involve

emergency services, hospital admissions, mental health intervention, police

involvement or eventual placement into long-term state-run accommodation and

institutional care. These outcomes are traumatic for everyone involved and ultimately

far more expensive for the government and healthcare system.

For families like ours, these proposed reforms create constant fear and uncertainty

about the future. We are being forced to justify supports that have already

demonstrated their necessity in maintaining safety, dignity, routine and stability.

Removing these supports will not increase independence, it will dismantle the very

foundation that makes independence and quality of life possible in the first place.

pg. 4

Submission 437

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

Conculsion

I strongly believe that ‘The Securing the NDIS for Future Generations Bill 2026’ is a

fiscally driven attack on the lives of young disabled adults.

A Government cannot responsibly extract $37.8 billion from a scheme that handles

critical human infrastructure before an equivalent, fully operational and accessible

state-based system is built. The devil is in YOUR details and currently, those details

threaten to trap a generation of young disabled Australians in their homes, isolated,

unsupported and causing families to break down.

For these reasons, I urge the Committee to make the following recommendations to

Parliament:

▪​ Withdraw the Bill.

▪​ If not withdrawn, extend the Senate Committee process.

▪​ Conduct an impact-driven Human Rights Review.

▪​ Release all modelling re: Access, Funding, System Changes Impacts,

Workforce Impacts,

▪​ Remove or restrict Determination Powers.

▪​ Do not Cut Social and Community Participation Budgets.

▪​ When considering eligibility or change, do not do so using automated

decision-making systems; retain a holistic individual support requirement

approach.

▪​ Preserve the current plan end dates, lifelong disability cover and

reassessment rights.

▪​ Remove suspension or revocation provisions.

▪​ Do not commence access changes until replacement supports are evaluated

and functional.

▪​ Release information re: cost shifts from federal to state/territories.

▪​ Protect Self-Management and the choice of trusted personal care

employment arrangements.

▪​ Do not reduce Participant Choice and Control.

▪​ Ensure further/future Consultation involves independent Disability Community

Advocacy regarding any changes and reforms.

pg. 5

Submission 437

National Disability Insurance Scheme Amendment (Securing the NDIS for Future

Generations) Bill 2026

Respectfully submitted by,

(NDIS participant’s family support, May 2026)

pg. 6