Complex medical needs and support coordination (Family or carer experience) | External submission

Submission 518

P.O. Box 61OO

SUBMISSION:

( Securing the NDIS for future Generations ) Bill 2026

My husband and I have two, adult daughters with multiple disabilities and associated complex medical issues.

HOW THE NDIS IMPACTS YOUR LIFE:

it has given us a future for our daughters lives
ongoing funding for support services
fexibility approach to use of funds
opens doors that were previously closed WHAT SUPPORTS MATTER MOST TO YOU:
funding for the continuance of our Plan Manager who manages the girls NDIS funds
ongoing funding for our Support Co-Ordinator who is so necessary to the girls in terms of liaising with their support services
and our LAC ( Local Area Co-Ordinator ) who liaises with NDIS for changes to PLANS and/or clarifcation of what funds can be used for purchases and services.

Submission 518

CHANGES:

the future of our daughters lives
impact on current support services
will close doors on current services if PLANS are severely modifed
loss of our Support Co-Ordinator and Plan Manager services
isolation
safety
breaking the circle of supports that are working well WHAT MUST CHANGE BEFORE THIS BILL PASSES:
It might also be benefcial to the Minister and the government if he were to acknowledge that those who have not misused the funding and have worked within the processes will not be punished !
It also might be progressive for the Minister to look at other ways to fund the NDIS OTHER THAN

LEAVE THEM IN THE WILDERNESS,,,,,,,,AGAIN !

Soften his approach! Listen to what suggestions others may have in terms of ‘changing the NDIS’
The Disability community needs to be on board with the ‘changes’ !
Their needs to be solid agreement on how the ‘changes’ are going to work,,,,,, CONSENSUS!
RIGID FLEXILIBITY might be useful
Consultation, consultation, consultation

Submission 518

Thank you for this opportunity to participate in this important process before us.

Yours sincerely,

23rd May, 2026