Safeguarding framework structural failure and disability-led innovation (Individual advocacy)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 634

The Pepperpot Collective™

Name: Neil McCarthy

Location: United Kingdom

Role: Founder

Contact e-mail:

Website: www.thepepperpotcollective.com

Submission to the Senate Inquiry into the NDIS Amendment (Getting the

NDIS Back on Track) Bill 2024

My name is Neil McCarthy, and I am submitting this evidence from the United Kingdom. I am the

founder of The Pepperpot Collective, a disability-led organisation built on a simple ethos: “How can I

help?” — the belief that disabled people are not only service users, but contributors with insight,

expertise, and solutions. As part of this work, I have developed Althing™, a disability-designed

safeguarding and counter-fraud model intended to reduce harm by ensuring that no participant is

ever required to coordinate their own protection during a crisis. This submission does not seek to

promote a product; rather, Althing™ is referenced only as an example of what becomes possible

when disabled people are invited to help shape the systems intended to keep them safe. I would be

happy to provide further detail or technical explanation should the Committee wish to explore this

model in more depth.

I write as a neurodivergent founder whose lived experience informs my understanding of how

safeguarding systems function in real-world conditions. My partner is an NDIS participant, which

gives me additional insight into the practical challenges participants face when seeking help,

particularly in unsafe or coercive environments. These perspectives shape my work within The

Pepperpot Collective and underpin the disability-led design principles behind Althing™, which I

reference only to illustrate the value of disability-led innovation.

As an observer who is not an Australian citizen and does not currently reside in Australia, the

proposed reforms to the NDIS appear to prioritise cost-containment before disability-led

consultation. The disability community understands that reform is necessary to preserve the Scheme

and its positive impact, and that demonstrating value for money to the Australian taxpayer is

essential.

However, the scale and speed of the proposed cuts give the impression that they are being used as a

substitute for disability-led reform — reform that could achieve similar outcomes without the

harmful consequences these cuts will have for disabled Australians.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 634

In particular, the existing safeguarding framework requires a participant in crisis to contact three

separate bodies, often while still in an unsafe environment. This is a structural failure. Disability-led

solutions exist that could address these safeguarding gaps and strengthen system integrity without

reducing supports.

Disability-led innovation and consultation have the potential to offer alternatives to the proposed

cuts. Althing™ is one example of an ND-designed safeguarding and counter-fraud model that enables

safe, early-intervention communication without requiring the participant to coordinate their own

protection. To this end, disability-led innovation has the potential to reduce the fraud and rorting

widely cited as drivers of the current reforms — and to do so without negatively impacting NDIS

participants. Models such as Althing™ demonstrate that strengthening integrity and safeguarding

does not require reducing supports, but rather redesigning systems so disabled people are no longer

forced to coordinate their own protection during moments of crisis.

At the same time, disability-led solutions allow the NDIS to tap into a resource that has been

consistently under-utilised in reform: the participants themselves. Disabled Australians are willing to

contribute to safeguarding and integrity improvements, and their lived experience is one of the

strongest assets available to guarantee both the sustainability and long-term future of the NDIS.

I thank the Committee for considering this submission.