Harmful impacts of NDIS amendment on participants and families (Provider experience)

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Submission 734 - Supplementary Submission

Submission to the National

Disability Insurance Scheme

Amendment (Securing the NDIS for

Future Generations) Bill 2026

Attention: Committee Secretary, Senate Standing Committee on Community Affairs

Submitted by email: community.affairs.sen@aph.gov.au

Date: 01/06/2026

I welcome the opportunity to make a submission to the Senate Standing Committee

on Community Affairs about the National Disability Insurance Scheme Amendment

(Securing the NDIS for Future Generations) Bill 2026 in my role as an employee

(Senior Speech Pathologist and Allied Health Team Leader) at Lifespan therapies.

About Me and my role at Lifespan Therapies

Lifespan Therapies is a multidisciplinary paediatric allied health provider supporting

children and young people with disability and developmental needs in the Morton

Bay areas of Queensland. Our team includes physiotherapists, occupational

therapists, speech pathologists and allied health assistants, working with participants

across home, community, educational and clinic-based settings, with therapies

tailored to where participants needs them most.

My submission is informed by direct experience supporting NDIS participants and

their families through early childhood intervention, capacity building supports, school

participation, assistive technology, multidisciplinary care and long-term

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developmental planning. As a clinicians who graduated in 2007, I have nearly 20

years post graduate experience in my field of Speech Pathology, working closely

with participants, families and educators. In the last two years the shift within the

NDIS has been marked and I have seen first hand the practical impact that

legislative and policy decisions have on access to supports, developmental

outcomes and participation in everyday life. Before the introduction of this Bill

participants plans have already begun to be slashed, people are already being

directed off the scheme and so many of the families were work with are being forced to go through the ART for amendments, as their plans are not meeting their needs.

I want to outline the harm this Amendment Bill will cause if it passes Parliament.

This Bill is too far-reaching to pass as it stands. It is rushed and I believe the Bill

requires further scrutiny and amendment before it proceeds or it will result in far

reaching harm and have unintended negative consequences for disabled Australians

and their families and caregivers.

Parliamentary Scrutiny and Transparency

The consultation period for the Amendment Bill is two weeks, which is grossly

insufficient to allow for appropriate consultation, considering accessibility and

communication needs. The Australian Government Guide to Policy Impact Analysis

says consultation should occur for a minimum of 30 days and given the sweeping

changes being proposed and to a population that requires time and accommodations

to engage with and prepare responses to, this is unjust.

The short timeline impacts me as an allied health provider and a parent to a child

accessing the scheme for their disability, by restricting the opportunity to provide an

accurate and detailed recount of all the risks posed by these amendments. There

is an extensive list of changes with minimal time to properly read the bill in detail,

whilst also continuing to provide vital supports to Australia’s most vulnerable children

and families to ensure their health and wellbeing and parents my osn three children,

one of whom has a permanent disability.

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Recommendation: I urge that the consultation period be amended, for a best

practice to the minimum of 30 days.

Key decisions left to ministerial instruments, not law

The issue: The Bill allows Ministers to change who gets NDIS support (Schedule 1

Parts 8 and 9) and how much funding people receive (Schedule 1 Part 4; Schedule

  1. by signing an instrument, without going back to Parliament. The rules that will determine critical eligibility thresholds (Schedule 1 Parts 1, 8 and 9) have not yet

been written.

How this affects participants: The decisions that shape the lives of participants,

whether they qualify for the NDIS and what supports they can access, could be

changed without parliamentary debate or public scrutiny. Participants may not

know supports or eligibility rules have changed until their plan is affected.

This decision is extremely dangerous for the lives of all. There is NO consideration of

a risk matrix and the potential risk a blanket reduction of supports has to individuals

whom rely on these to be kept alive. In past ART Cases, such as KDKJ 2025, it was

determined that agency decisions were made without consideration of the risk that

decision made to the life of an NDIS recipient. Such decisions create a significant

risk of harm where funding reductions occur without consideration of an individual’s

support requirements, health risks and protective factors.

In my own circumstance, my child’s plan had a funded therapy support cut without

consultation in plan review. The planner admitted they had not even read the report

from the psychologist and stated that “psychology was not an NDIS support but

belonged in health”. This was completely unfounded and in-correct and I had to fight

to have this support reinstated, whist in the mean time coping with the financial strain

of paying privately for the support to continue and having to modify my families

finances by stopping sporting activities for my other children so as to pay for the

support and not disrupt my child’s progress and create overwhelm by leaving her

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unsupported without any notice. The relational trust and relationship built in this time

for my child was one of their main reasons for capicity to have been build and I know

first hand the improvement achieved. Ultimately the support was reinstated, but not

without significant emotional turmoil and cost both finically and physically to myself

for having to advocate over a protracted period for a needed support. What the bill is

now proposing risks this happening to entire population groups, who currently have

no other means of support. Medicare supports and thriving kids supports are NOT

the same, and thriving kids has not even been built yet.

Recommendation: Require that all decisions affecting NDIS eligibility and funding

levels be made through primary legislation subject to full parliamentary scrutiny, with

mandatory advance notice to affected participants before any changes take effect

and a longer transition period to ensure that systems and supports are in place

outside of the NDIS.

Existing participants face narrower criteria and fewer rights to challenge decisions

The issue: The Bill changes the rules for existing NDIS participants and makes it

harder to challenge some decisions about supports and funding. It also restricts

when you can request a reassessment, removes review rights for automatic plan

renewals, and makes funding reductions unreviewable (Schedule 1 Parts 1 and 8).

Combined with restrictions on reassessment requests (Part 2), automatic plan

renewals without review rights (Part 5), and unreviewable funding reductions (Part

4), existing participants face narrower criteria with significantly fewer avenues to

challenge decisions about their supports.

How this affects participants: This does not protect participants already on the

NDIS, who could be reassessed under stricter rules. If someone’s funding is reduced

or their plan renewed automatically, they may have limited or no ability to challenge

that decision. This could make it harder for people to get extra support when their

circumstances or disability change. Disability is not static, peoples needs change

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over time and disabled children grow into disables adults. What is suitable at age 5 is

not the same as what is suitable at age 15.

Again, making a blanket funding reduction without first assessing the participant is

detrimental and could have life-threatening implications. Many NDIS participants

receive only the bare minimum of supports within their NDIS plans. Combined with

the introduction of quarterly funding periods, there is only just enough funding each

quarter for the ‘perfect weeks’ which never occurs in real life – especially in the life of

a disabled person. The current funding does not allow for worse days, weeks or

months where increased supports are needed due to illness or other ‘atypical events’

which occur far more regularly than one would expect in a disabled person’s life.

The system is already overburdened and not consistently using the same rules and

processes for plan reviews or renewals and the communication to participants and

their representatives is significantly reduced. This proposed bill provides no

warning or preparation for families to allow them to be prepared with adequate

evidence to prove their needs. Beyond what they should have to fight for when

already fighting daily to care for their loved ones.

As a paediatric provider, I regularly work with children whose support needs fluctuate

over time due to developmental progression, changes in educational environments,

family circumstances, medical needs and life transitions. Restricting reassessment

opportunities and review rights may prevent participants from accessing supports at

the time they are most needed and may delay intervention during critical

developmental periods resulting in worse outcomes for everyone.

Recommendation: Require a “no harm” safeguard ensuring no current participant

loses access to supports unless equivalent supports are in place, with independent

review rights before any exit decision and access to unscheduled reassessments

preserved.

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Increased evidence burden on participants and families

The issue: The proposed amendments increase reliance on reassessments,

functional capacity assessments and evidence requirements to establish eligibility

and support needs. At the same time, some review and reassessment rights are

reduced, creating additional complexity for participants seeking to maintain access to

supports.

How this affects participants: Participants and families may face increased

pressure to repeatedly demonstrate eligibility and justify support needs while

navigating complex disability, health and education systems. Gathering evidence

often requires specialist reports, assessments and professional input, which can be

costly, time-consuming and difficult to access due to workforce shortages and

waitlists.

Families of children with disability already spend significant time coordinating

therapies, medical appointments, educational supports and advocacy activities.

Additional administrative and evidentiary requirements may disproportionately impact

those with the least capacity to navigate complex systems, creating barriers to

accessing the supports they require.

Recommendations: Ensure evidence requirements remain proportionate,

accessible and participant-centred, with clear review pathways and funded access to

assessments where additional evidence is required to establish eligibility or support

needs.

Unreviewable ministerial power to cut funding across all support categories

The Minister can reduce funding for any support or group of supports by a

specified percentage through an instrument that cannot be challenged

(Schedule 1 Part 4). This applies across all budget categories. Unspent funds will no

longer carry over at plan renewal (Schedule 1 Part 5).

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How this affects participants: A participant’s community participation, capacity

building or assistive technology funding could be cut without warning and without any

right to appeal. Participants who save unspent funds across plan periods for high

cost items will lose that ability entirely.

Funding is already managed with finite precision to ensure the ability to have essential

ongoing supports that participants need daily, weekly and monthly. Families schedule

this to ensure it is timed appropriately and in accordance with the legislation to ensure

they are accessing the right supports at the right time for their child or participant.

Assistive technology funding is used to purchase equipment items when someone is

at the right size and need. Repairs and maintenance is not done at the start of a plan

as it is dependent on the annual maintenance cycle just like a car. It must be serviced

at set times to ensure the longevity of items. Removing the funding because the NDIA

decides it should have been spent is detrimental and will lead to further requests for

assistive technology, or lack of equipment for people by not having the access to these

essentials when needed. Likewise, funding for capacity building supports is spent

according to the professional recommendations of highly qualified and experienced

health professionals whom have extensive post graduate knowledge.

In my experience, NDIS funding is rarely allocated in excess of participant need.

Families and clinicians already make difficult decisions about how finite funding can

be used to achieve the greatest functional outcomes. Capacity building supports,

assistive technology, school collaboration and parent coaching are carefully prioritised

based on clinical evidence and participant goals.

Unspent funding should not automatically be interpreted as unnecessary funding. In

paediatric practice, funding is often intentionally reserved for planned equipment

purchases, equipment maintenance, periods of increased support need, intensive

therapy blocks, school transitions or specialist assessments. Preventing carryover or

applying blanket reductions may create circumstances where participants are unable

to access supports at the time they are required.

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Recommendation: Require that unspent funds carry over at plan renewal for

participants saving for high-cost items and require independent review rights before

any funding reduction takes effect.

Requirement to exhaust treatment options before eligibility

The issue: A person with disability will need to exhaust treatment options before they

can be eligible for the Scheme (Schedule 1 Part 8). There will also be a removal of

whole-of-person assessment, replaced by single eligible impairment consideration

(Schedule 1 Part 3). The note that previously acknowledged environmental factors

and other ineligible impairments could affect support needs will be removed

(Schedule 1 Part 3).

How this affects participants: People with disability will need to prove their

impairment cannot be treated before they access the NDIS. Once in the scheme,

their supports will only be assessed against a single eligible impairment rather

than their whole experience. A person’s individual circumstances will not be

considered, including ability to pay for treatment, where they live or whether

treatment is actually available to them and likely to be beneficial to their unique

circumstances.

As an early childhood provider, I am concerned that a requirement to exhaust

treatment options before eligibility may delay access to supports during critical

developmental windows. Children do not have unlimited time for intervention.

Delayed access to support while families pursue multiple treatment pathways may

result in poorer long-term outcomes, increased support needs and greater costs to

the Scheme over time.

Diagnostic pathways alone can take years to complete. In many cases, families

spend significant periods waiting for specialist appointments, genetic testing,

investigations and final diagnostic confirmation before treatment options can even be

explored. Genetic testing alone may take more than two years from referral to final

results. For many rare and complex disabilities, there may ultimately be no available

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treatment options, however this cannot be determined until the diagnostic process is

complete.

Access to treatment options is also not equal. Availability varies significantly based

on geography, workforce shortages, waitlists and a family’s financial circumstances.

Eligibility decisions should recognise these practical barriers rather than assuming

treatment pathways are equally accessible to all Australians.

Recommendation: Do not proceed with a requirement to exhaust “appropriate

treatment” options – there are no safeguarding measures around participant harm

due to side effects or complications, a participant’s financial ability to pay, or their

geographic capacity to access treatments.

Unvalidated functional capacity assessment tool risks misidentifying need

The issue: The Bill shifts assessment from whole-of-person consideration to a single

eligible impairment (Schedule 1 Part 3). Read together with the eligibility thresholds

in Parts 8 and 9, the tool used to conduct functional capacity assessments must be

capable of sufficiently identifying whether a person meets the threshold for that

single impairment.

The named assessment tool is the Instrument for Classification and Assessment of

Support Needs (I-CAN). I-CAN requires validation to ensure it will sufficiently identify

the needs of all people with disability, including those whose needs may be

fluctuating or episodic and may not be captured through a point-in-time assessment,

and to ensure it is culturally appropriate for First Peoples with disability.

How this affects participants: If the assessment tool does not accurately capture

the full extent of a person’s disability, including needs that fluctuate or vary over time,

a participant may be found ineligible or have their supports undercounted, with no

guarantee the result reflects their actual experience. The tool has not been assessed

on the populations it is going to now be used on and the train the trainer proposed

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method for its implementation also grossly simplifies the experiences of a disabled

person and makes it unsafe.

Functional capacity in children cannot always be accurately captured through a

single point-in-time assessment. Many children demonstrate different levels of

function across home, school, community and clinical environments. Children may

also perform significantly differently when supported by familiar caregivers, when

fatigued, during periods of illness or during times of transition.

Any assessment framework must incorporate multidisciplinary clinical evidence,

reports from families and educational settings, and consideration of developmental

trajectories rather than relying solely on a standardised assessment outcome. Any

assessment must also be administered by trained clinicians who understand the

clinical populations the tool is being used on. One fit for all tool is simply way too

simplistic to capture the broad needs and nuance of disability experienced by

Australians.

Recommendation: Do not proceed with I-CAN as the functional capacity

assessment tool unless it has been demonstrably validated to identify the

needs of all people with disability, including those with episodic or fluctuating

disability, and demonstrated to be culturally appropriate for First Peoples with

disability.

Developmental trajectories cannot be assessed through current function alone

The issue: The proposed amendments place greater emphasis on functional

capacity assessments and eligibility thresholds based on current presentation. This

approach risks failing to adequately consider developmental trajectories and future

participation requirements, particularly for children and young people.

How this affects participants: Children may not currently demonstrate significant

functional limitations but may have clear indicators of future disability-related support

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needs. Early intervention is effective because supports are provided before

functional limitations become entrenched. Assessing children solely on their current

level of function may delay access to supports until difficulties become more severe,

reducing the effectiveness of intervention and potentially increasing long-term

support requirements.

Children develop within changing environments and face increasing participation

demands as they move through early childhood, school and community settings. A

child’s support needs cannot always be accurately determined through a point-in

time assessment without consideration of developmental progression and future

participation expectations.

Recommendation: Require assessment processes to consider developmental

trajectories, anticipated participation demands and future support needs, rather than

relying solely on current functional presentation.

Mainstream systems assumed to provide replacement supports

The issue: The Bill places increased emphasis on determining whether supports

should be provided through other service systems rather than the NDIS. However,

many mainstream systems, including health, education and community services, are

already experiencing significant workforce shortages, waitlists and funding

constraints. The Bill provides no guarantee that equivalent supports will be available

before NDIS supports are reduced or removed.

How this affects participants: Participants may lose access to supports based on

an assumption that another system will provide them, when in reality those supports

may not be available, accessible or adequately funded. Families frequently

experience lengthy wait times for public allied health, specialist medical services and

educational supports. This may leave participants without access to essential

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services for extended periods, resulting in deterioration of function, reduced

participation and increased reliance on informal supports and carers.

As a paediatric provider, I regularly support families who have already exhausted

available mainstream services before accessing the NDIS. In many cases, public

services are unable to provide the frequency, intensity or specialised support

required to meet a child’s needs. Without demonstrated capacity within these

systems, participants may lose access to supports without a viable alternative being

available.

Recommendation: Require evidence that equivalent supports are available,

accessible and operational within alternative service systems before NDIS-funded

supports can be reduced or removed.

Supports cut before replacement system is ready

The issue: From 1 October 2026, the government has announced funding for social,

civic and community participation supports will be cut by 50 per cent and capacity

building daily activities by 10 per cent for all participants, reductions that will be

implemented through the ministerial instrument power in Schedule 1 Part 4. The

Foundational Supports system intended to fill that gap has no confirmed

implementation date and is not yet operational.

How this affects participants: Supports that help participants connect with their

community, build skills and maintain independence may be cut before anything

exists to replace them, leaving carers and families with greater responsibilities and

no additional support. These supports are often what help people stay visible,

connected and safe.

Capacity building and community participation supports are often incorrectly viewed

as discretionary supports. In reality, these supports frequently prevent escalation of

needs by building participant independence, supporting caregiver capacity and

promoting meaningful participation in everyday life.

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For many children, capacity building supports delivered through allied health

services improve communication, mobility, emotional regulation, participation in

education and social inclusion. Reducing these supports before replacement

systems are operational risks creating service gaps that may take years to recover

from.

Any reduction should occur only after replacement systems have demonstrated

accessibility, capacity and effectiveness.

Recommendation: Require that no reductions to community participation or

capacity building supports take effect until Foundational Supports are fully

operational, adequately funded and demonstrably able to meet the needs of those

who will lose NDIS supports.

The proposed shift away from whole-of-person consideration is of particular concern.

Children rarely present with a single isolated impairment. Functional outcomes are

influenced by the interaction between physical, communication, cognitive, sensory,

behavioural, environmental and social factors.

Effective support planning requires consideration of the whole child and their

participation within family, educational and community contexts. A system that

focuses narrowly on a single eligible impairment risks underestimating support needs

and reducing the effectiveness of interventions.

Conclusion

Lifespan Therapies supports efforts to strengthen the sustainability, integrity and

consistency of the NDIS. We recognise the importance of ensuring Scheme funding

is directed appropriately and that safeguards exist to protect both participants and

public confidence in the NDIS.

However, we are concerned that several proposed amendments may unintentionally

reduce individualisation, limit participant safeguards and create barriers to timely

access to supports, particularly for children and young people with disability. We

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encourage the Committee to carefully consider the cumulative impact of these

changes, particularly where reduced review rights, increased evidence requirements,

reliance on unvalidated assessment processes and assumptions regarding

alternative support systems may combine to create unintended harm for participants.

We respectfully recommend that the Bill be amended to strengthen participant

safeguards, preserve individualised decision-making and ensure that no participant

loses access to essential supports without appropriate assessment, review rights

and demonstrated alternative pathways of support.

Senior Speech Pathologist and Allied Health Team Leader

Lifespan Therapies

Brendale, Queensland

Email:

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Submission to the National Disability Insurance Scheme Amendment (Securing the