National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 768
25.5.26
NDIS FUTURE GENERATIONS BILL 2026
To whom it may concern,
I am writing to you, because I oppose the above-mentioned Bill in it’s wholeness.
I am the parent of a NDIS participant with severe cerebral palsy and epilepsy and other additional health concerns. My daughter is nearly 18 years old and has been on the scheme since 2016. Beforehand, we were on the WANDIS trial and Better Start Program plus initially on block funding.
Even though we had to go through AAT Tribunal within the first year being on NDIS and went through a further few hiccups through misinformation by LAC’s and NDIs planners, we have been happy with NDIS and most of the time, my daughter has received enough funding to maintain her physical abilities, general health and mental wellbeing.
However, the new bill is of great concern as it seems to me that the participants are getting punished for the wrongdoing of the government and NDIS management in general. It is not the participants that are raiding/abusing the system it’s the NDIS itself with its horrendous pricelists and the service providers who try to milk the system. Plus, the never-ending queue of people going through AAT and ART. I am currently in a peer group of self-managers. 5 out of 7 participants are or have gone through ART only to finally get what they asked for in the first instance. It would be interesting to see how much money the NDIS is wasting every year in ART or Tribunals since its inauguration in 2016.
I am writing to you about following issues:
-
Cut in community participation by 50%. My daughter is leaving school this year in October. She is a social butterfly and needs to be able to socializes and meet other people on a regular basis. She would love to join cooking groups, sports groups like bowling or boccia, art classes and peer groups who use AAC devices. All of these options are offered through service providers but at a cost. If the bill gets through, she would not be able to be as active as before and would need to stay home more often in an environment where she would feel lonely as she needs people around her. Her mental health would suffer greatly. We parents are 60years old and are preparing for retirement. It should not be up to us to look after our child until our passing. We need people and service providers around her to help her getting more independent.
-
Self-management. It is imperative to us that we are able to employ our own support workers and not using a service provider. Service providers send you anybody and they don’t know our daughter and the difficulties it brings in supporting her. We don’t know who is coming to our house and I don’t know if my daughter likes them. If we chose the support workers
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 768
ourselves, we can choose somebody who fits the team, who is liked by my daughter (this is not only an important part when it comes to showering and toileting), we can train them ourselves and show them all they need to know to give our daughter the best life possible. We would lose independent support workers if they have to spend a lot of money in registration fees and also if they had to do a certificate III before they could work. NDIS screening test, WWC, police clearance should be sufficient. We never had any issues with support workers and treat them like family.
I would like to ask that the above-mentioned Bill should be reviewed and together with the participants a good solution should be found. It is in the interest of the participant that there is longevity in the NDIS.
I would appreciate, if you could talk about these issues in parliament or if you could give me your position on the above matters.