National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 907
Dear Committee Members,
My name is and I am an autistic person with ADHD who relies on the NDIS to live independently, participate in my community, and continue building a meaningful life and career supporting other disabled people. I also live with Type 1 Diabetes, which requires constant monitoring and management every day. The NDIS is not just funding to me. It is what allows me to function sustainably and participate in my community with dignity.
I do not support the NDIS Future Generations Bill 2026 in its current form. I am especially concerned about the proposed functional capacity testing and the reassessment of participants from 2028 onwards. Many disabled people already spend years repeatedly proving their disability and support needs. These proposed changes feel stressful, uncertain, and harmful rather than supportive.
As an autistic person with ADHD and Type 1 Diabetes, I already spend a significant amount of mental and physical energy managing appointments, routines, executive functioning, emotional regulation, health monitoring, and avoiding burnout. My support needs can fluctuate depending on stress and my overall health. The idea of ongoing reassessments and stricter testing creates constant anxiety that I could lose supports that help me remain stable, safe, and connected to my community.
The NDIS has helped me work toward independence, confidence, community participation, fitness, and meaningful support programs that benefit both myself and others. Without reliable supports, these opportunities become impossible to maintain. Disabled people should not have to live in fear that essential supports can be reduced or removed because of changing assessments or unclear criteria.
I ask the Committee to recommend significant changes to this Bill, including stronger protections for participants, preservation of review and appeal rights, and safeguards against reassessments that create unnecessary distress and instability for people with permanent disabilities.
Kind regards,