National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 93
Submission to the Senate NDIS enquiry
My bane is . Mu son is 35 years old, he is Autistic and intellectually disabled. Right now for us the NDIS means that has 24/7 (SIL) care in a home he shares with 2 housemates, supported by a trusted team of support workers who are helping him to achieve his goals of living in his own home, learning self-care and life skills, participating in social and community activities of his choice, and where he is safe, well cared for and happy His Positive Behaviour Support Practitioner, OT, Physio and Orthotist are vital members of his team, provided for in his Plan and necessary to his wellbeing. has a lot of difficulty self-regulating his emotions, and has a lot of triggers, so the work his Positive Behaviour Support Practitioner together with his support workers have put in has made the world of difference for him. He loves his varied daily routine of participating at the community garden, gym, library working in support3ed employment with Workpower and getting out into nature with his trusted support workers.. I advocate for and spend a lot of time behind the scenes communicating with his care team, but knowing that is in a good place, well cared for and doing the things he loves gives me peace of mind and some freedom.
I’m very worried about the proposed changes to the NDIS Act. I do not think these changes have been explained clearly enough. I’ve learned more about it from facebook posts by fellow parents than I have from the government. They give no regard to the people whose lives they are upending.
If social and community supports were reduced or removed he would react as though his whole world had ended, because IT HAS. He’d be confused, sad, anxious and angry He won’t understand why his whole routine, his whole way of life has changed. Routine is everything for and change is very very hard. To make sense of it he will devise new rules for himself or he’ll show new behaviours to protest against the forced cessation of his beloved activities. His life will be poorer,
If capacity building supports were reduced or removed his skills and abilities will degrade. He learns and maintains his skills by repetition. If he doesn’t practice it, he loses the ability to do it. He doesn’t have the ability to self-manage and pick up skills by himself. His PBSP, OT and Physio Therapists are vital to his physical and mental health and wellbeing because they gather information from and instruct, guide and inform and his care team, so reducing or removing them will be catastrophic.
The proposed changes to the definition of permanence would mean that we would be put on an endless heartless merry-go-round. is 35 years old. When he was diagnosed there was no such thing as early intervention. We did everything we could to help him. We tried every therapy available. We should not be penalized for things beyond our control.