Concerns about social and community participation funding cuts (Family or carer experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 951

My name is , I am writing to you about the NDIS Future Generations Bill 2026 because I have many concerns about this Bill. My daughter is a NDIS participant and is a young, vibrant, happy adult. I am 69 years old; my daughter’s father had a stroke 7 years ago and is in a wheelchair. My daughter needs support and needs to be with younger people, peers who she can learn from. I am asking you to vote against the Bill unless it is amended. The 50% cut to social and community participation funding from October 2026 is just beyond belief. My daughter cannot drive; she is non-verbal and cannot read or write. My daughter cannot go to the shops by herself or to meet-up with friends. My daughter relies on her support people to take her out and about in the community and keep her safe. Surely, she has a right to go out and explore the world as most people do. Participating in the community should be a part of everyday life for everyone. I don’t believe that sitting at home getting bored is good for anyone’s health or mental state. For people who rely on supports to go out a 50% cut will be devastating. My daughter is fortunate to have a great team of support people around her. This has not happened overnight, it has taken a long time, hard work and a lot of trial and error to get to this stage and is afforded due to the NDIS. My daughter is blossoming. I self-manage my daughters funding because I am a big believer in ‘choice and control’ and I like to choose who is working with her, I need to be able to trust them. Surely, I know her the best and I know what makes her happy and she likes continuity. Most of my daughters supports are independent sole-traders and I would like to make sure her supports do not have to register and can continue to support her. We have built long relationships with them and prefer to have some permanence with supports. Further, the Minsters new power to cut funding without appeal (s34A) is just unbelievable. To become a NDIS participant, you must jump through many hoops, you must provide reports from doctors, schools, allied health professionals, specialists. I have never had to provide so much information for my first born, for anything; but my disabled daughter I have files and files and files. This Bill amendment is making people with disability, and their families jump through ever more and higher hoops, with added uncertainty and extra stress. I appreciate your time in reading this and would appreciate confirmation that you have received my email. I would also very much like to know your view on this and if you would like to contact me, please feel free.

Yours sincerely,