Submission 2 — Child and Family Health Nurses Association NSW Inc — Provision of services under the NDIS Early Childhood Early Intervention Approach

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http://www.aph.gov.au/Parliamentary_Business/Committees/Joint/National_Disability_Insurance_Scheme/EarlyChildhood

NOTE: Responses must be targeted, appropriate, evidence based and solution oriented.

TERMS OF REFERENCE- REPORTING COMMENT

CRITERIA

1.                                                              •   Suitable tools and education are required. This information needs to be disseminated to paediatricians,

Eligibility criteria for determining access health care providers, non-government intervention and linkers regarding assessment process.

to the ECEI pathway                               •   Tools such as those used by Child family health nurses such as ASQ3 & ASQ SE should be

recognized by providers as adding to assessment and used as indicators of developmental delay prompting further assessment

2.                                                              •   The ECEI approach supports families to help children develop the skills they need to take part in daily

Service  needs  of  NDIS  participants             activities and achieve the best possible outcomes throughout their life. This may require psychosocial

receiving  support  under   the  ECEI           parent assessment and intervention, also support in home enhancement This may include practical

support and resources for parents to carry out day to day changes to enhance their child development      pathway                                                        and to optimise child developmental function.
  • A child family health nurses would assess within the context of parenting which reveals family strengths and vulnerabilities impacting on child development (Arnold Sameroff -nature and nurture)

    1.                                                          •   The appropriate response to assessment indicating child development delay needs to reflect the
      

    Timeframe in receiving services under research evidence and understanding of neurodevelopment with regards “optimum window” periods for

the ECEI pathway child development in the early years.

  • A timely intervention to childhood development delays in the early years needs to be preventive with knowledge of child psychological development as stated in Fonagy (1998 )paper “ Prevention, the appropriate target of infant psychotherapy’ outlines the theory behind child behavior intervention in the early years .

  • The younger the child the more prompt the response required to emolliate delay before it compounds further delays. Short targeted intervention required. Playgroups with interventionist support are needed intervene to convince /educate parents on the need for their child to get early preventive intervention.

    1. Adequacy of funding for services under • Services need to be provided to enhance access to families with young children to be identified as

the ECEI pathway having delay

  • LTSAE (learn the signs act early) promoted to parents so they identify delay ,interventionists team integrate with health service , inclusion supports, and access to child family health nurses for the routine personal health record for health and developmental assessment

    1. Costs associated with ECEI services, • Often vulnerable families have transport costs; require siblings to be minded during assessment

including costs in relation to initial process. Parent may have psychosocial issues preventing them attend appointments diagnosis and testing for potential ECEI participants

  1. Evidence of the effectiveness of the Unable to provide response

ECEI Approach

7.    Robustness of the data required to               •   Need measures that are evidenced based and need regular reassessments

identify and deliver services to participants under the ECEI

8.    Adequacy of information for potential            •   ECEI -Websites advertised promoted

ECEI participants and other stakeholders

9.     Accessibility of the ECEI Approach,              •   Transport issues address with funding and rural remote health care providers educated about referral

including in rural and remote areas pathways

10.    Principle of choice of ECEI providers       Unable to provide response

11.    Application of current research and         Unable to provide response

innovation in the identification of conditions covered by the ECEI Approach, and in the delivery of ECEI services