Submission 39 — Lapstone Preschool Early Childhood Intervention Service — Provision of services under the NDIS Early Childhood Early Intervention Approach

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LAPSTONE EARLY CHILDHOOD INTERVENTION SERVICE

 NDIS Services with children from birth – 9 years & their families (family centred, flexible, inclusive)

 Trans-disciplinary Early Intervention & Therapy services, Key Worker & Service Coordination

Provision of services under the NDIS Early Childhood Early Intervention

Approach

http://www.aph.gov.au/Parliamentary_Business/Committees/Joint/National_Disability_Insurance_Scheme/EarlyChildhood

Terms of Reference-         Current Situation                             Suggested Strategies

Reporting Criteria

1.                                    Currently children aged 0-6 with           Continue with current eligibility criteria as it is the

developmental concerns/or diagnosed expertise of the local ECEI approach partners disability are referred by their concerned who can support children and their families to families and mainstream providers of child seek further understanding of their child’s current and family support services (e.g. development (be it typical or atypical) and guide preschool, childcare, playgroup, health, the ECEI pathway. Whether that be referring family support services, etc…) to receive straight into mainstream supports (e.g. access to varying levels of support based on preschool for a child with chronic medical issues)

Eligibility criteria for                   functional need. This is a crucial aspect                                                                                      or short term supports (.e.g. strategies to

determining access to the          as engagement with families who                                                                        promote fine motor and engagement in

ECEI pathway                         potentially otherwise would not be                                                                         communication within the home or child care

engaged enables ECEI support to begin setting) or longer term disability supports. early and respectfully to all families.  Well developed local referral pathways are already established with mainstream providers.  Functional play-based assessment delivered in the child’s natural environments provides early identification

of developmental functioning.  Specifically aimed as a ‘soft entry’ point with the underpinning qualities of best practice based on the ECIA National

Guidelines for Best Practice Early

Childhood Intervention.

2.                                    At all interaction points service needs of    ECEI participants who are at the beginning of

NDIS participants receiving support under their journey:

the ECEI pathway are gathered, listened                                                                                       Local services are experts in local area

to and guided in seeking the right support supports who can tap quickly into for their specific, identified need. For community/mainstream supports example, at a point of phone referral a family may be guided to information about Service needs of NDIS

local hearing services.                 ECEI Participants who do head in a journey that   participants receiving

NDIS individualised supports are required: support under the ECEI

pathway                                                                            Key worker model is the preferred model

support for young children.  Support co-ordination be offered in complex need situations  Crucial for ECI providers to deliver Best practice ECI

3.                                                                                      NDIA to minimize technical issues                                      Endeavouring to provide wait time that is

substantially.                                     minimal and seeks to not adversely   Timeframe in receiving

impact on the wellbeing of children and services under the ECEI

their families.   pathway                                                                   Planning and plan reviews for access met

  Contact with families to begin discussion                                                                                           participants:

re their referral concerns occurs in a

timely manner  Face to face planning conversations and

  At time of first contact families are                reviews

supported immediately                               Allowing time to gather data and carry out

face to face contact reviews.

  Further planning to adequately quantify4. Adequacy of funding for            ECEI services are delivering value for

and fund delivering key ECEI functions   services under the ECEI          money from the start, saving time and

under the ECEI strategy .e.g. ECI best   pathway                     money for the local expertise that already

practice is NOT to carry out planning with can deliver support and information to families via a quick phone call and funding families with their knowledge. needs to reflect a very responsive approach.

 Close collaboration with ECEI partners,

5. Costs associated with ECEI        Service offered in natural environments          NDIS, and across systems such as Health

services, including costs in          minimising the cost for ECEI participants                                                                          and Education to plan for better diagnosis

relation to initial diagnosis          Diagnosis is not required to receive ECEI         systems.

and testing for potential support.

ECEI participants                  Participants are advised to follow

mainstream pathways that related to initial diagnosis with a variety costings (free→cost) offered.

6. Evidence of the            The approach is in it’s infancy in delivery in the    NDIS individualise plan effectiveness:

effectiveness of the ECEI NDIS funded space, but is well established in

More robust outcomes data to be required by   Approach                      delivery in the wider ECI community.  There is

service providers at time of plan review to enable strong research evidence to support the ECEI access partners to make informed decisions re approach plan review A small research study (presented at the Enable short term funds to ECEI access partners National ECIA conference , Melbourne, to capture families journeys through the ECEI September 2016) indicates very high approach. effectiveness with the participant, participant’s

family and mainstream early childhood supports. NDIS to fund independent action based research on the effectiveness of the ECEI approach with ready and willing ECEI access partners.

7. Robustness of the data       Currently participants are involved in data          Pedi-cat usage:

required to identify and         collection. Some of this data collection need to                                                                           That this tool be used as a guide – not a tool for

deliver services to          be related more to participant’s’ initial concerns                                                                                   devising plans/plan values.

participants under the ECEI and collected at various journey points. Approach A variety of data is collated to reflect true outcomes based on the initial concerns of participants.

8. Adequacy of information for   Local ECEI approach are providing the best      More funds to be available to ECEI access

potential ECEI participants    information available to them at hand.             partners for community engagement with

and other stakeholders stakeholders to be able to engage with stakeholders, continue linkages and disseminate information. NDIA: To continually engage with stakeholders in support of ECEI access partners upholding and sharing the core knowledge of ECEI best practice.

Accessibility of the ECEI9.                         Works well when delivered by local ECEI        ECEI Participants who do not go the eventual

Approach, including in rural                                  partners.                                       path of Individualised NDIS supports:

and remote areas; That locally based ECEI providers remain as a key link to respectful and timely support When NDIS individualised package of support is facilitating capacity, linkages and development of established: the child’s skills and upskilling of core supports. Families area being penalised for choosing a ECEI Participants who do head in a journey that best practice provider who is travelling to them

as the cost is too high and being forced to NDIS individualised supports are required:

choose their non-preferred provider.                                                                                       That they continue to access their ECI

provider of choice.  Travel costs need to be adequately reflected to enable best practice ECI to be delivered in natural settings – this needs to make sure tha travel is covered well.

Continual NDIA education to the community about referral pathways.

Principle of choice of ECEI10                     A mix of local ECEI providers is currently          Maintain local ECEI providers who have well

providers                                  occurring.                                    developed community referral pathways

Application of current11                             Strong adherence to ECIA best practice         NDIA take note of current research and support

research and innovation in                                  guidelines                               ECEI partners and ECI best practice providers to

the identification of deliver to participants conditions covered by the ECEI Approach and in the delivery of ECEI services

Any other related matters12 Do not push participant’s through in un realistic time frames that potentially compromises good planning conversations that occur the first time round.

IF a family chooses reputable best practice ECI service who delivers in the child’s natural home

setting to delivery their package of supports to meet their goals they should not be penalised re transport costs if a service closer to them is available yet does not offer ECI best practice, has a policy of inhouse therapy only and does not relate therapy to goals.