Submission 55 — Cora Barclay Centre Attachment 1 (Attachment 2) — The provision of hearing services under the National Disability Insurance Scheme (NDIS)

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OUTCOME RESULTS

2015

No limits For Children Who Are Deaf

Hearing loss is one of the most common disabilities in newborns, affecting approximately 2 in 1,000 babies each year.

Australian Hearing, 2013 #

ABOUT THE

CORA BARCLAY CENTRE

The Cora Barclay Centre      The aim of the Cora Barclay Centre        Thanks to early diagnosis and

is to help children who are deaf or continuing advances in hearing

is the oldest and most                                           hearing impaired, achieve life-long         technologies, the vast majority of

comprehensive dedicated     social and emotional well-being and        children attending the Cora Barclay

Listening and Spoken          economic independence.                 Centre (and other First Voice centres*),                                                               who have no additional disabilities,

Language (LSL) program     The Centre provides evidence-based,      achieve speech, language and

multi-disciplinary services for children comprehension that is comparable to

in Australia providing        who are deaf or hearing impaired,          children of the same age with normal

intensive, evidence-             the majority of whom are fitted with       hearing by the time they go to school.

based intervention               hearing aids, cochlear implants or                                           other listening devices. Programs

through Auditory-Verbal include early childhood intervention, Therapy (AVT). student services, social participation programs, and ongoing monitoring and assessment to children from birth to 18 years and their families.

1 per 1,000 live births is the estimated rate of permanent childhood hearing loss that is identified at, or very close to, birth. By the time each ‘birth cohort’ has reached 5 years of age, this rate has risen to approximately 3 per 1,000 children. National Framework for Neonatal Hearing Screening August 2013, Page 4 http://health.gov.au/internet/main/publishing.nsf/Content/neonatal-hearing-screening

  • First Voice is the national voice for six centres providing listening and spoken language early intervention for children with hearing loss in Australia and New Zealand. Members are the Cora Barclay Centre (SA), Hear and Say (QLD), The Shepherd Centre (NSW/ACT), Taralye (VIC), Telethon Speech and Hearing (WA) and the Hearing House (NZ). First Voice champions the right of all people who are deaf or hearing impaired to listen and to speak.

CORA BARCLAY CENTRE

ASSESSMENT PROTOCOLS

In February 2010, the Cora Barclay The Cora Barclay Centre is committed

Centre introduced a new standardised to evidence-based practice. Cora assessment protocol as part of the Barclay Centre Programs are continually First Voice early childhood intervention reviewed in light of national and outcome measures. This protocol international research and its own assesses the speech, language and program evaluations. The Centre uses vocabulary development of children its own assessment data to: aged 9 months to 5 years enrolled in the Early Childhood Intervention 1. AVT Program. Obtain objective measurements of each child’s speech and language The protocol of the Cora Barclay Centre development to inform their individual has been to extend the standardised therapy plan. assessment protocol to students of school age from 5 years to 18 years 2. measuring progress at different ages Enable objective comparisons between as part of the First Voice research. children who are deaf or hearing From 2015 all students on service were impaired undertaking the assessed using summative assessments Cora Barclay Centre AVT Program at ages 5 years, 9 years and 12 years. and children with normal hearing of the same age in order to determine whether their spoken language skills are equivalent to their hearing peers.

  1. Monitor and evaluate the effectiveness of Cora Barclay Centre Therapy Programs.

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92% of children with permanent hearing loss are born to hearing parents.

Mitchell & Karchmer, 2004

CORA BARCLAY CENTRE

ASSESSMENT METHOD

95 children aged between 6 months Cora Barclay Centre programs are and 12 years who were enrolled in the continually reviewed in the light of AVT Early Intervention (EI) or Student national and international research Services (SS) program at the Cora Barclay and its own program evaluations. Centre were assessed from January As part of its evidence-based approach, 2015 to the end of December 2015. the Cora Barclay Centre contributes its data to the First Voice national 5 year old data will be reported in both clinical database. Data collected in the EI and SS outcomes reports as some 2014 from 628 children from across students are assessed before they start Australia and New Zealand in the school at age 5 and others once they Early Intervention programs offered have started school. in First Voice Centres was reported in the ‘Sounds Outcomes’ project. Our results will be compared with the data from the First Voice report. This is available at firstvoice.org.au

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HEARING

LOSS

Permanent childhood hearing loss can English as an additional language be congenital, late-onset, progressive, and or dialect backgrounds or acquired in nature. Length of time optimally aided with Congenital Hearing loss refers to hearing hearing aids or cochlear implants loss that is present at birth and is often identified through a newborn hearing Presence of an additional disability screening conducted shortly after birth. Presence of an additional speech The Cora Barclay Centre defines Late and language disorder not related Diagnosis as congenital hearing loss to hearing loss. diagnosed after 12 months of age.

asha.org/Practice-Portal/Clinical-topics/ The Cora Barclay Centre supports

Permanent-childhood-Hearing-Loss/ children who experience one or more of the above factors and their assessment The Cora Barclay Centre 2015 Outcomes results have been included with the document highlights the outcomes for exception of those children who were children late diagnosed with hearing unable to participate in standardized loss. In addition to late diagnosis other testing. It is consistently reported that factors can contribute to outcomes below close to 40% of children with hearing the average range. These can include: loss have an additional disability.

Consistency of wear of agbell.org/Document.aspx?id=454 amplification device

Family engagement to early intervention and capacity to implement strategies in all communication settings

For children affected by hearing loss, the future prospects are positive.

Thanks to early diagnosis, continuing advances in hearing technologies and access to listening and spoken language early childhood intervention at a very young age, children who are deaf or hearing impaired have the potential to learn to listen and to speak.

THE KEY ASSESSMENT

TOOLS USED BY THE

CORA BARCLAY CENTRE

Early Intervention

Pre-School                Peabody Picture            Goldman Fristoe

Language Scale              Vocabulary Test               Test Of Articulation

Edition (PLS-5)                Edition 4 (PPVT-4)           (GFTA)

The PLS-5 is divided into 2 parts:         The PPVT-4 tests a child’s understanding   The GFTA is a norm-referenced

(1) Auditory Comprehension which         of words used to name objects and        assessment of articulation which

assesses the understanding of             describe actions and attributes. It          provides standard scores and percentiles

spoken language and (2) Expressive          is
a norm-referenced assessment of       from early childhood to adulthood.

Communication which assesses the        vocabulary which provides standard      The test provides information about a

child’s verbal language. Both parts          scores, percentiles, and age-equivalent      child’s articulation ability by sampling

of the assessments are used to             scores from early childhood to adulthood.   both spontaneous and imitative sound

calculate the total language score.         Standard scores have a mean or average   production of consonants and vowels.

of 100 and one standard deviation is a The distribution of errors is greatly

The PLS-5 is a norm-referenced            difference of 15. Therefore children who    skewed across ages and does not

assessment which provides standard       score between 85 and 115 fall within one   approach a normal distribution at most

scores, percentiles, and age-equivalent     standard deviation of the mean of 100      ages. Therefore it may be better to

scores for children from birth to six        and
are within the ‘average range’.          refer to the percentile rather than the

years. Standard scores have a mean standard score when interpreting results or average of 100 and one standard for this particular assessment. deviation is a difference of 15. Therefore children who score between 85 and 115 A percentile is a way of comparing fall within one standard deviation of a child’s score to scores obtained the mean of 100. Sixty-eight percent by other children of the same age. (68%) of the population fall within one For example, a percentile rank of 5 standard deviation of the mean. indicates that out of 100 of the same age children, that child is performing at the same level or better than 5 out of 100 children. A percentile between 16 and 84 indicates abilities that are within the average range. Percentiles below 16 represent some developmental delay or impairment. Percentiles below 3 indicate a significant degree of delay or impairment.

Student

Services

The Clinical Evaluation of

Language Fundamentals

Edition 4 (CELF-4)

The CELF-4 Australian identifies children with delayed or disordered language from ages 5 to 21 and assists in determining the student’s language strengths and weaknesses in:

Receptive Language

Expressive Language

Language Structure

Language Content

Language Memory

Working Memory

The test provides information about a child’s understanding and use of spoken language by assessing the components of spoken language such as syntax, semantics, vocabulary, memory and comprehension. The standard score system for the CELF-4 is similar to the PPVT-4, in that is has a mean or average of 100 and one standard deviation is a difference of 15. Therefore, children who score between 85 and 115 fall within one standard deviation of the mean of 100 and are within the ‘average range’.

EARLY

INTERVENTION

Better Ear Hearing Loss

Figure 1: Degree of hearing loss of children assessed 7 receiving services from the 11 Mild (21-40dBHL)

Cora Barclay Centre Early

Intervention Team. Moderate (41-70dBHL)

The severity of hearing in the better         44             15        Severe (71-90dBHL)

ear was predominately moderate 11 (27%), with equal numbers of children with severe and profound Profound (>90dBHL) (20%), mild (13%) and children with

normal hearing in one ear (20%).                                                               11                    Normal (-10-20dBHL)                     13+27+20+20+20+L

Assessment Age

Figure 2: Number of children

assessed grouped by                         6 mth        2

assessment age in 2015.

12 mth 12 A total of 55 children were assessed using standardized assessments 24 mth 6 in 2015. Not all children were assessed using the entire battery

of Early Intervention Assessments.                      3 yrs                                    12

4 yrs 18

5 yrs 5

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Hearing Devices

Figures 3 and 4: Hearing devices

The children in Early Intervention were reported to have the following types of aiding:

Two hearing aids 51%

Two cochlear implants 20%

One cochlear implant and one hearing aid 2%

One hearing aid 15%

One bone conduction hearing aid 2%

No device 10%

Bilateral Unilateral

1                                                                             1            3

1

11           2CI                                                    1BC

2HA                                          5      1HA

44                 1BC/1HA                  11                None

5 1HA

28                      None25+64+2+7+2+L     45+46+9+L

CI - Cochlear Implant

HA - Hearing Aid

BC - Bone Conduction Hearing Aid

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EARLY INTERVENTION - ASSESSMENT TOOL RESULTS

Pre-School Language Scale Edition

(PLS-5) 1

Figure 5: Total Language

Standard Scores for children aged between 6 months and 4 years.

An overview of the total language 145 scores for the Early Intervention data set (including students with additional disabilities and English as an additional

language         and/or                   dialect).                     The average

range is a         standard                  score falling                          between                                     Score  115

85 and 115. Results found:

85 Standard71% of children scored within the average range or above (85 and above). Of that number 30% were late diagnosis. 45

38% of children aged between 12                                          1                            Children Assessed                            42

months and 4 years are considered to have a late diagnosis.

6 mths          12 mths - late diagnosis           Average range (85-115)29% of children were below average

12 mths 24 mths - late diagnosis

range (below 85). Of that number                                                          24 mths       3 yrs - late diagnosis

50% were late diagnosis.                                3 yrs         4 yrs - late diagnosis

4 yrs

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EARLY INTERVENTION - Assessment Tool Results

Peabody Picture Vocabulary Test Edition 4

(PPVT-4) 2

Figure 6: Standard Scores

for children aged 3, 4 and 5 years.

An overview of the scores for the Early Intervention data set (including students with additional disabilities 125 and English as an additional language 115 and/or dialect). The average range is a standard score falling between 85

and 115. Results found:                                                                                          Score  95

79% of children scored within the                   85average range or above (85 and                                                                               Standard

above). Of that number 23% were 65 late diagnosis.

27% of children aged between 3 50

years and 5 years are considered                                         1                               Children Assessed                           33

to have late diagnosis.

21% of children were below average

range (below 85). Of that number                       3 yrs         3 yrs - late diagnosis             Average range (85-115)

4 yrs 4 yrs - late diagnosis 42% were late diagnosis. 5 yrs 4 yrs - late diagnosis

Results on the PPVT-4 are consistent with those on the PLS-5, again identifying children diagnosed after 12 months of age representing just below half of the children assessed with a vocabulary standard score below average range. This result reinforces the critical importance of

early     diagnosis            and                    early intervention

on listening          and              language                       outcomes.                                                   12

EARLY INTERVENTION - Assessment Tool Results

Goldman Fristoe Test of Articulation

(GFTA) 3

Figure 7: Percentile ranks for children aged between 3, 4 and 5 years.

An overview of the scores for the Early Intervention data set (including students with additional disabilities 100 and English as an additional language 84 and/or dialect). The average range is a percentile between 16 and 84. Rank Results found: 60 79% of children scored within Percentile 40 the average range or above (between 16 and 84).

16 Of the children that fell below the average range 71% were children 0

that were late diagnosis.                                                           1                          Children Assessed                             34

The results demonstrate that 79% of children with a hearing loss reported in

this data have age appropriate speech                       3 yrs         3 yrs - late diagnosis             Average range (85-115)

while highlighting the significant impact                    4 yrs         4 yrs - late diagnosis

of late diagnosis on the development of                      5 yrs         4 yrs - late diagnosis

children’s speech.

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70 % of children in Early

Intervention and Student

Services achieved spoken language outcomes commensurate to their hearing peers.

STUDENT

SERVICES

Figure 8: Degree of hearing loss in children assessed receiving services from the

Cora Barclay Centre Student

Services Team.                                      4                4

Mild (21-40dBHL)

The severity of hearing in the better Moderate (41-70dBHL) ear was predominately moderate (30%),

with equal numbers of children with                   20                                                         3                                   Severe (71-90dBHL)mild and profound (13%), severe (10%)

and children with normal hearing in one ear (34%). Profound (>90dBHL)

9 20+45+15+20+L

Figure 9: Number of children assessed grouped by assessment age in 2015.

5 yrs 3 A total of 30 children were assessed in 2015. 9 yrs 17

12 yrs 10

15

Figures 10 and 11: Hearing devices

The children in Student Services were reported to have the following types of aiding:

Bilateral hearing aids 37%

Bilateral cochlear implants 17%

Unilateral hearing aid 27%

Bilateral bone anchored hearing aids 3%

No device 16%

Bilateral Unilateral

3

2HA 1HA

1

2CI None

5                       5     20                                2BC            10

11 5

1HA55+25+5+15+L 50+50+L

CI - Cochlear Implant

HA - Hearing Aid

BC - Bone Conduction Hearing Aid

16

Children diagnosed after 12 months of age when provided with ongoing support from

the Cora Barclay Centre

can achieve outcomes within or above the average range.

STUDENT SERVICES - ASSESSMENT TOOL RESULTS

Clinical Evaluation of Language Fundamentals – 4

(CELF-4) 4

Figure 12: Total Language

Standard Scores for

children aged 5, 9 and 12 years.

An overview of the total language 130 scores for the Student Services data set (including students with additional 115 disabilities and English as an additional 110 language and/or dialect). The average Score range is a standard score falling between 85 and 115. Results found: 70 85 Standard 86% of children scored within the average range or above (85 or 70 above). Of that number 42% were late diagnosis. 50

1                                Children Assessed                       30

43% of children assessed are considered to have a late diagnosis.

14% of children were below average

5 yrs         5 yrs - late diagnosis             Average range (85-115)

range (below 85). Of that number                                                       9 yrs         9 yrs - late diagnosis

50% were a late diagnosis.                                        12 yrs            12 yrs - late diagnosis

Results on CELF-4 are consistent with data collected from children in the Early Intervention program identifying children diagnosed after 12 months of age representing half of the students assessed with a language standard score below average range.

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WHAT DO THESE

ASSESSMENT

RESULTS TELL US?

These assessment results National Comparison demonstrate that in 2015: At the national level, all five Australian First Voice centres follow the same

  1. Over 70% of children in Early standardised assessment protocols Intervention and Student Services yielding a consolidated national achieved spoken language outcomes outcomes database of over 700 children in our listening and spoken commensurate to their hearing peers. language programs. Analysis of the First Voice clinical database shows

  2. Close to 80% of children in the outcomes very similar to those reported Early Intervention Program achieved above, providing further validation of the effectiveness of listening and speech outcomes commensurate to spoken language early childhood their hearing peers. intervention as practised in Australia.

  3. The majority of children diagnosed The Cora Barclay Centre uses these objective assessments: (1) to review after the age of 12 months had poorer and modify each child’s individual speech and language outcomes service plan in order to achieve the compared to children diagnosed best possible outcomes for each child and (2) to evaluate our programs before 12 months of age. and compare them with those of comparable organisations.

  4. Children diagnosed after 12 months of age when provided with ongoing support can continue to improve their spoken language and achieve outcomes within or above the average range.

SUMMARY

The results reinforce the critical importance of early diagnosis and early intervention on listening and spoken language outcomes and the continuing need for ongoing intervention at school age to ensure any gaps in language are addressed. The data demonstrates that a higher percentage of students diagnosed after 12 months of age are now performing with a standard score within or above the average range and the critical importance of ongoing intervention.

Design Art Direction kindly donated by Brighter Design brighter.comau

The Cora Barclay Centre is a

not-for-profit organisation and has

Deductible Gift Recipient(DGR)

status with the Australian Tax Office

NDIS Registered Number 88043740

ABN 44 598 581 496

185 Melbourne Street

North Adelaide 5006

08 8267 9200

reception@corabarclay.com.au

corabarclay.com.au