National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 4255
The NDIS submission Proposed changes to NDis terrify me. I want to continue to build capacity and prosper. I want my family to prosper. I want my grandkids to prosper. Reducing cutting funding is cruel and unnecessary. My first Support from Ndis . My first Support Worker supported myself very well, I chose a small provider. My Support Worker was a second year occupational therapy student. She knew exactly how to support me because she was semi qualified in her chosen field. She was a lucky fluke for me and she set the standard for what I knew I needed in a Support Worker. She supported me three days a week. Eventually she graduated took a full-time appointment at the local hospital. My experience with this semi qualified occupational therapist student was great. I improved in every area within the time she worked with me. I continued to build capacity and after a year began thinking about if and when I could return to the workforce part-time. I continued to improve until she left . I was unable to find a suitable QUALIFIED IN ANY WAY support worker. I was able to overcome this setback eventually, but in the case of autistic people under constant extreme stress we regress; I was to learn 1st hand about this. I deteriorated with six months , lost all my capacity became very depressed and angry. I was cut off from all the confidence building motivational support that I’d experienced.
My second Support Worker was a continual fluctuating parade of unsuitable fraudsters It took me eighteen months to find a suitable Support Worker. In the time that I didn’t have a suitable Support Worker & at times no Support Worker at all, I continued to deteriorate my life folded up. I became depressed, despondent, angry and suicidal being autistic All these conditions are exacerbated more so than in neurotypical people. These experiences showed myself & my allied health prof’s I needed support to do any daily living tasks like shopping Drs App hair app paper wk follow up socialisation Activities maintain friendships all that I had done to build capacity in myself with my first support Wkr It’s called shadowing - my Support Worker works beside me & we do the tasks together. When I’ve had enough sleep I function much better. I have had ongoing sleep issues when I’ve no support wks who understand AUTISM . I find stopping difficult, to let go of the Days activities and go to bed. It’s not just difficult at the moment it’s insurmountable. This only happens when I’m severely stressed and since the government announced 160,000 people to lose Ndis Support I’m severely stressed and it’s a constant pain in my thoughts that I deliberately try not to focus on. If my support is denied I know I won’t survive. My support workers are helping me through this & I’m seeing improvements especially if I don’t pay any attention to right wing news media & the current governments media.
I’m encouraged by the Greens politicians who support the NDis. I don’t want to die but Im a realist; if Ive got no support the suicide idolization (part of autism) will return. Since having NDIS support I’ve had one intense period of depression and suicidal thoughts. it occurred when NDIS cut my funding by two-thirds.
Submission 4255
The proposed changes to the National Disability Insurance Scheme Amendment (Securing the NDIS For Future Generations) Bill 2026 scare me a great deal.
being granted my full funding again, I’ve not experienced such intense sad thoughts. I have got three different support workers; two are sole traders. One is still with a Labor hire company, but she will eventually leave that very abusive system and become a sole trader.
I don’t employ any registered providers large or small. I only employ Sole Traders or people planning to become one due to fraud that I’ve experienced from providers and service organisations.
My six grandkids—three of whom are autistic and receive NDIS funding—needed help with language processing. Due to this assistance, one grandson is nineteen years old now training as a professional athlete: it has been his dream since he was eight years old. He also works for Ndis coaching other young boys with disabilities while receiving some Ndis support. My other grandson was completely non-verbal at birth; through Ndis intervention, he can speak attends school pursuing a career in car mechanics. The aid received from ndis enabled them both flourish. Taking away our access to funding would cause us all go backwards. We won’t be able work without Ndis’s support.
The changes haven’t yet explained by the government (Labor). It feels like a huge secret we must discover via nasty letters over the next 2 yrs.
With no social community supports, I’ll not function society. It means living an unmeaningful life lacking purpose.
Please do follow thru with planned cuts.
Reduce privatised NDIs MAKE IT gov run reduce costs.
My Autism permanent cannot cured . Support helps me endure neurotypical world. Rheumatoid arthritis permanent cannot cure. Can helped heat therapies massage drugs which have severe side effects that only taken short periods of two three then break .
If NDIS decided my disability wasn’t permanent want know how it got cured
Want own medical team trust supporting rather than quasi allied health person am certain you wouldn’t trust unqualified help for yourself or family so why should any AUSTRALIAN?
Fraud perpetrated by NDIS & service org.
I waited three years someone organise plumber change eight tap heads in house; occupational therapists approved this and ndis provided funds but nobody organised task didn’t understand roles people involved funding within system—this down to those running scheme Privatising care organisation ALWAYS DETRIMENTAL THOSE BEING CARED FOR.
A plumber employed changing taps because hands can operate ordinary one charged $4000 change on eight taps home yard Didn’t realise they charge amount.
I’d known I would never have employed them . I’ve been around the building trade my whole life I know what services are worth. This service was worth $500 at the most. My plan manager was aware of the quote & employed them because she has no knowledge of the building industry & why would she? She’s not been trained to be a building estimator. If I had Acess to my plan etc I’d see that mistake and stop it .. the nbn doesn’t afford me reliable service so emails and govt portals are not accessible to me most of the time . A mobile phone /ipad app would work far better for many NDIS clients. I’ve learnt that the Ndis’s site is pathetic but most of the time I can’t Acess it due to poor nbn .
#2 Fraud small provider The provider was one that was recommended to me as my daughter knew the person who founded it. Sadly that person had left the company and gone on to do something else. The person running the company told me on a zoom meeting that the Support Worker she wanted to supply me with was an experienced Support Worker & the Support Worker said same we chatted for 15 minutes in the zoom meeting. I said yes to her to start a shift the following Monday for three hours to see how we worked out . I would say her performance was fair and I was prepared to give her another shift to see how she went as sometimes it takes me a little while to feel comfortable around people . During her 1st shift her phone was pinging often . I told her if she’s got kids and they need to contact her she should answer it . She did this & then continued to do it throughout both her shifts . She was actually looking up emails etc at one point she said oh great I’ve passed another module In my training . That’s when I asked more questions of her past experiences. She was an experienced ndis cleaner. There is a massive difference between a cleaner and an experienced Support Worker. The Financial difference is $20 an hour for the company that employs them. When she left after her second shift I said goodbye . I rang my support coordinator told her of my experience She rang the company and terminated their services. Next day the company Manager emailed my support coordinator and told her a totally different story that painted me as a liar .
#3 LOSING CAPACITY Since I’ve had Ndis Support, I’ve lost capacity twice both times I was thinking about going back to the workforce even if it was just one day a week and each time the Ndis destroyed my ability to do that by not having qualified support workers that had more than a pulse and by cutting my funding that I had to fight for eight months to get back and I still don’t have Complete funding.
#4 Autism Assistance Dog . I have purchased my own Dog to be my assistance Dog from a reputable source. We are in training with a trainer so that he can be Support for me. He already is performing that role. He’s not fully through his training yet but he will be an excellent support Animal. He’s made a massive difference to my life. I’ve asked Ndis for help with his expenses and so far I met with rules and regulations and I understand that he’s not qualified yet. I don’t expect Support for
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 4255
him yet but what I wanted to know was what kind of support can I expect when he is fully qualified? That is a question. I’m still trying to find an answer to.
#5 $20,000 + $10,000 fees to register as a provider .
Why is it necessary for providers to pay the government up to $20,000 to be a registered provider and then agree to be audited once a year costing up to $10,000 per year . I’ve never heard of any other providers of government services like KPMG PricewaterhouseCoopers Serco having to provide registration fees and I know just those three companies have committed fraud. Seems the whole process is fraudulent.
#6 why are all the services associated with the NDIs privatised? Why aren’t we under a similar arrangement to Medicare?
Why are we privatised? We all know that privatisation Services prioritise profit over Care; that is evidence in every single privatised service within the Australian government and all states and territories. The services were government run to begin with because they were never designed to make a profit so no company wanted them now with privatise services. There is Always a drop-in service and a rising price, and that’s where the money for the Ndis is disappearing.