FOI 25/26-3703 Document 4

EC: PEC - Carers - Sustaining

informal supports

SGP KP Publishing

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FOI 25/26-3703 SGP KP Publishing – EC: PEC - Carers - Sustaining informal supports

1 Recent updates …………………………………………………………………………………………………….. 2 Before you start …………………………………………………………………………………………………….. 3 Additional knowledge articles ……………………………………………………………………………….. 4 Carers questions in the PEC case ………………………………………………………………………….. 5 What are responsibilities of informal, community and mainstream supports? ……….. 6 Sustaining informal supports ………………………………………………………………………………… 6.1 PEC question: ‘After considering informal, community and mainstream supports, does the family require NDIS funded supports to sustain their caring role because of the child’s developmental delay or disability’ …………………………………………………………………………………….. 6.2 PEC question: ‘to help with the child’s daily routines such as completing personal care’ .. 6.3 PEC question: ‘to have time to attend to daily tasks’ ………………………………………………. 6.4 PEC question: ‘to attend to other responsibilities such as siblings needs’ ………………….. 6.5 PEC question: ‘to have a break from caring for the participant’ ………………………………… 7 Guidance for planner delegates on funding Core Supports for children younger than 9 ………………………………………………………………………………………………………………………………………… 7.1 Examples of support item scenarios: ……………………………………………………………………. 7.1.1 Specialised Home-Based Assistance for a Child: …………………………………………………………….. 7.1.2 Assistance With Self-Care Activities – Standard: ……………………………………………………………… 7.1.3 Assistance With Self-Care Activities - High Intensity:………………………………………………………… 7.1.4 Intensive and Complex Behaviour Support: ………………………………………………………………

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This article provides guidance for early childhood partners and planner delegates about:

Carers in the Personal Environmental Circumstances (PEC) case
What are responsibilities of informal, community and mainstream supports
Sustaining informal supports
Funding Core Supports for children younger than 9

It important that the PEC is completed accurately so that the TSP accurately reflects the child with developmental delay or disability and their family’s actual circumstances and needs.

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1 Recent updates

10 February 2025

Guidance has been updated to include information on how different support items can be applied for core supports for children younger than 9.

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2 Before you start

You have read and understood:

Article EC PEC Daily Supports
Our guideline - Mainstream and Community Supports (external).

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3 Additional knowledge articles

For information on the PEC case – Capacity building questions relating to other areas, refer to: support coordination, go to article EC PEC Carers - Support Coordination.

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4 Carers questions in the PEC case

The responses in the PEC case for Carers are completed by the early childhood partner and planner delegates in non-partnered areas. It should capture any relevant information to support the planner delegate to make a decision about funded supports the child and family may require, to sustain their caring role.

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5 What are responsibilities of informal, community

and mainstream supports?

Informal support provided by parents and carers, siblings and other family members is vitally important to children. Typically, the supports provided to children for support with daily activities and community access is provided by family or carers. Some children also receive support from mainstream services such as early childhood education and care or school.

Funded supports in a plan are not intended to replace the usual care and supervision provided by family or informal carers, or what is available through community and mainstream services. Information on a child’s participation in early childhood education and care and school settings can be found in responses to the PEC case – Daily Supports questions, in the participant statement and within the completed ecomap.

Where children require a level of support with daily activities significantly beyond the level usually required for a child of the same age, funded supports in the plan may be required. To be considered for funding, the need for any increased level of support must be directly attributed to the child’s developmental delay or disability. Where there are considerations to include support in a plan to assist in sustaining informal supports, an understanding of a child’s overall support needs is required. This includes identifying the range of informal, community and mainstream supports which are available and what is needed so the informal supports can be sustained.

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6 Sustaining informal supports

When answering the PEC questions, any relevant information should be added to the free text field and then to the Activity log to ‘Internal notes’ if it does not fit in the space provided.

redacted: [s47E(d) - certain operations of agencies](/library/documents/bc455e3f7247-foi-24-25-0515-documents/document-015__47e-d-certain-operations-of-agencies/)

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redacted: [s47E(d) - certain operations of agencies](/library/documents/bc455e3f7247-foi-24-25-0515-documents/document-015__47e-d-certain-operations-of-agencies/)

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redacted: [s47E(d) - certain operations of agencies](/library/documents/bc455e3f7247-foi-24-25-0515-documents/document-015__47e-d-certain-operations-of-agencies/)

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7 Guidance for planner delegates on funding Core

Supports for children younger than 9

This guidance provides clarification as to how different support items can be applied for Core supports, particularly for children younger than 9.

7.1 Examples of support item scenarios:

7.1.1 Specialised Home-Based Assistance for a Child:

This support item provides specialist assistance in the home that is required due to additional requirements of a child’s developmental delay or disability and may be provided to strengthen the sustainability of informal supports.

Note: this rate should only be used if you are confident all the care will only be provided in the home environment and the child does not have complex support needs.

Note: There is no weekend rate for this support. For weekend assistance, planners should consider the ‘Assistance with Self-Care Activities’ rate.

7.1.2 Assistance With Self-Care Activities – Standard:

These support items provide a child with assistance with, or supervision of, personal tasks of daily life.

This rate applies to children who require assistance in or out of the home with daily personal activities. This can be used for children with behaviours of concern that require moderate support or for other circumstances such as personal care support.

7.1.3 Assistance With Self-Care Activities - High Intensity:

These support items provide a participant (including children under 9 years of age) with a need for High Intensity Supports with assistance with, or supervision of, personal tasks of daily life. This rate applies to children with disability-related health support needs that require high-level assistance, for example complex feeding needs, respiratory care, or dysphagia.

Note: Ensure funding for Registered Nurse (RN) delegation and supervision of care is also included for these children, using the CB - Improved Daily Living budget.

For more information refer to Supplementary module: High intensity daily personal activities | NDIS Quality and Safeguards Commission (external) and Disability Related Health Supports. Refer to article Determine disability-related health supports and meal preparation supports.

7.1.4 Intensive and Complex Behaviour Support:

This rate is intended and only included for children with very complex behaviours of concern where a support worker is needed to implement intensive and complex behaviour support plans and strategies.
Refer to the NDIS Pricing Arrangements and Pricing Limits 2024-25 (external)
Document for detailed criteria to apply this support item. Refer to article Understand behaviour support.

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